Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-06-2018, 10:58 AM #1
eviec3 eviec3 is offline
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Default Need help finding a good/kind RSD specialist. New to the area

Hello!

I was curious if anyone had any recommendations for a RSD specialist in the Humble/Kingwood area or even as about as far as Tomball? I have had RSD after doctors failed to give me treatment for Gullian Burray so it transformed into CIPD and gained the RSD during that change. As such I have been very neglected and abused by neurologists with god complexes for a long time.

My husband and I just moved out here to the Humble/Atascocita area and while I have been pretty much RSD free (as close as RSD free as we can hope) thanks to doing a Ketamine Treatment for 4 years but now it's coming back and it's coming back strong and fast so I need to find a doctor. But I'm nervous of finding a doctor that isn't going to be compassionate, kind, or experienced with the illness. If anyone has recommendations I would really appreciate it!
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Old 05-07-2018, 09:57 AM #2
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Quote:
Originally Posted by eviec3 View Post
Hello!

I was curious if anyone had any recommendations for a RSD specialist in the Humble/Kingwood area or even as about as far as Tomball? I have had RSD after doctors failed to give me treatment for Gullian Burray so it transformed into CIPD and gained the RSD during that change. As such I have been very neglected and abused by neurologists with god complexes for a long time.

My husband and I just moved out here to the Humble/Atascocita area and while I have been pretty much RSD free (as close as RSD free as we can hope) thanks to doing a Ketamine Treatment for 4 years but now it's coming back and it's coming back strong and fast so I need to find a doctor. But I'm nervous of finding a doctor that isn't going to be compassionate, kind, or experienced with the illness. If anyone has recommendations I would really appreciate it!
Maybe try calling RSDS.org - the support group. They might have a list of doctors in your area, or at least the name of a support group local to you that you can consult.

Good luck!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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