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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Bad week

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Old 06-19-2018, 11:14 PM #1
RSD31 RSD31 is offline
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Default Bad week
Will started my 38 years with the dragon and it has been bad the pain is height can't get nerv block ontil next week I feel like I just want to give up don't have anything more to give to the dragon and person said to me today how well I'm doing if they only new the truth how I feel inside its spread to my legs and to my stomach area and nothing seems to work sorry about venting just needed to put it down and get it of my chest.
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Old 06-19-2018, 11:45 PM #2
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Quote:
Originally Posted by RSD31 View Post
Will started my 38 years with the dragon and it has been bad the pain is height can't get nerv block ontil next week I feel like I just want to give up don't have anything more to give to the dragon and person said to me today how well I'm doing if they only new the truth how I feel inside its spread to my legs and to my stomach area and nothing seems to work sorry about venting just needed to put it down and get it of my chest.

Understand; your post says it all.
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Old 06-20-2018, 05:28 PM #3
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Hugs. So sorry to hear you are suffering and hope you get relief soon. People really cannot understand how bad this beast is and how much we struggle just to do little things. The DRG has helped my leg and it's amazing the difference that has made in my ability to walk...but my hands and arms are still 8/10 AT BEST and every time I touch something or use my arms it goes up...but no one sees that or how much of a struggle it is. I really hope you find some relief soon. Thinking of you.
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Old 06-22-2018, 09:01 PM #4
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Well got nerv block doing way better still have pain but can deal with it thanks everyone
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Old 06-23-2018, 05:18 AM #5
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Glad you are doing better. You've been in my thoughts
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Old 06-23-2018, 01:19 PM #6
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Glad your week is turning a little bit better. I hope the nerve block continues to do well for you.
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Old 06-29-2018, 05:33 AM #7
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I'm also glad you're doing a bit better in the pain department. Good luck & hang in there!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 06-30-2018, 10:08 PM #8
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Well got nerv block doing way better still have pain but can deal with it thanks everyone
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