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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-03-2018, 03:13 AM | #1 | |||
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I wouldn't attribute everything to CRPS. You can get different issues, stand-alone issues that need to be dealt with separately. It is therefore dangerous to just whack it all in with CRPS and think it comes with the territory.
CRPS is a stand-alone illness. I developed Menière in later years, and I am thankful that every doctor I went to examined me from scratch; or else it might have been all chalked up to CRPS. There is a danger in that! I also have been having migraines since puberty (age 14) and I got CRPS age 23; so I know those aren't related. It is more of a puzzle when you develop that after the fact. But don't let doctors make it easy on themselves and chalk it all up to what you already have. CRPS has its own symptoms, and headaches, I don't think are part of it. But don't quote me on that, I am no doctor. Just a patient with almost 23 years worth of experience and her own medical history.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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07-03-2018, 07:57 AM | #2 | ||
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CRPS is thought to be a heterogenous syndrome, not one disease. IOW, it can have different causes.
In my case, it would appear mine is linked autoimmune problems. I have some more common or at least more well defined autoimmune problems (like Addison's and thyroiditis) and some rarer ones. Like you, I have gastroparesis. I also have small fiber neuropathy, POTS, and Ehlers-Danlos syndrome (hypermobilty type). All of these last ones are linked to the CRPS. People with CRPS are more likely to have any of all of these than the normal population. So in this way, I don't consider CRPS a stand alone disease in my case. IVIg actually helps my CRPS, POTs and gastroparesis, adding more evidence that these diseases are linked and autoimmune in my case. I, too, have migraines. I think they are considered more common with CRPS but they were diagnosed separately. You should go to the doctor of course but if it's not obvious, mention the CRPS. The doctor may not know what CRPS is but some of my linked to CRPS diseases (any of which can occur individually) were diagnosed more quickly because the associations I mention. In short, yes, I do get severe headaches. |
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"Thanks for this!" says: | BioBased (07-07-2018), PurpleFoot721 (07-03-2018) |
07-10-2018, 02:33 AM | #3 | ||
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Quote:
This flare hurts. Blurry vision is common but current vision is blotto. It takes a lot of effort to proof resd. |
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"Thanks for this!" says: | BioBased (07-23-2018), PurpleFoot721 (07-10-2018) |
07-17-2018, 07:00 AM | #4 | |||
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Quote:
I know I have had stand-alone migraines as of age 14, so I *know* they are not related. I developed RSD/CRPS age 23. So it's perhaps easier for me to make that difference, say than it would be for someone who developed migraine in later phases of their life.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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