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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-13-2018, 12:03 PM | #1 | ||
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I am newly diagnosed and trying to find recommended treatment plans to stop the spread of CRPS. I've read in several places that if you catch it in the first year you can acheive remission but none are really clear in exactly how to do this. Has anyone here been able to accomplish this and what did you do? What kinds of regimens are you all on today? My pain management doctor has suggested a few different combinations and I'm trying to weigh pros and cons prior to my appt next week. If it makes a difference my CRPS is in my lower right leg, below the knee.
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08-14-2018, 10:32 AM | #2 | ||
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Junior Member
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Stop icing as soon as possible. Ice makes CRPS worse for most people and has been known to speed up the progress of the syndrome.
I have noticed massive symptom changes since switching to an anti-inflammatory diet. A couple versions of this exist online. I went through an integrative GI repair program. I have heard of lumbar spinal injections being used to induce remission within the first year, but it did not work for me. There is also a tightrope between not moving the area enough and moving it too much. Listen to your body on that. If I'm not able to do moderate exercise several times a week the sharp pains always come back, but if I do too much it's also real bad. |
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"Thanks for this!" says: |
08-20-2018, 11:38 AM | #3 | |||
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A good rehab program by a PT experienced in CRPS can work wonders, especially early after the CRPS begins. Lots of work with desensitization and gently moving it more and more, very slowly. It has to be done only to the point of feeling it will touch something off, not to tolerance like you would normally do when working out. It is a whole different way of doing things. There's a word for it that is escaping me right now!
A sympathetic block CAN stop the spread and reduce symptoms, but it isn't magic and it works for some and not others. |
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"Thanks for this!" says: | PurpleFoot721 (08-21-2018) |
08-20-2018, 02:10 PM | #4 | ||
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Quote:
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"Thanks for this!" says: | PurpleFoot721 (08-21-2018), shelbie4u (08-30-2018) |
08-21-2018, 08:59 AM | #5 | ||
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Fingers crossed, I'm just starting down this long road... |
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08-29-2018, 11:20 AM | #6 | |||
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__________________
All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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