Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-13-2018, 12:03 PM #1
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default Treatment plans

I am newly diagnosed and trying to find recommended treatment plans to stop the spread of CRPS. I've read in several places that if you catch it in the first year you can acheive remission but none are really clear in exactly how to do this. Has anyone here been able to accomplish this and what did you do? What kinds of regimens are you all on today? My pain management doctor has suggested a few different combinations and I'm trying to weigh pros and cons prior to my appt next week. If it makes a difference my CRPS is in my lower right leg, below the knee.
annabanana123 is offline   Reply With QuoteReply With Quote

advertisement
Old 08-14-2018, 10:32 AM #2
whiteaa whiteaa is offline
Junior Member
 
Join Date: Jun 2015
Posts: 67
8 yr Member
whiteaa whiteaa is offline
Junior Member
 
Join Date: Jun 2015
Posts: 67
8 yr Member
Default

Stop icing as soon as possible. Ice makes CRPS worse for most people and has been known to speed up the progress of the syndrome.

I have noticed massive symptom changes since switching to an anti-inflammatory diet. A couple versions of this exist online. I went through an integrative GI repair program.

I have heard of lumbar spinal injections being used to induce remission within the first year, but it did not work for me.

There is also a tightrope between not moving the area enough and moving it too much. Listen to your body on that. If I'm not able to do moderate exercise several times a week the sharp pains always come back, but if I do too much it's also real bad.
whiteaa is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
annabanana123 (08-15-2018), BioBased (08-20-2018), PurpleFoot721 (08-15-2018)
Old 08-20-2018, 11:38 AM #3
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

A good rehab program by a PT experienced in CRPS can work wonders, especially early after the CRPS begins. Lots of work with desensitization and gently moving it more and more, very slowly. It has to be done only to the point of feeling it will touch something off, not to tolerance like you would normally do when working out. It is a whole different way of doing things. There's a word for it that is escaping me right now!

A sympathetic block CAN stop the spread and reduce symptoms, but it isn't magic and it works for some and not others.
Becca71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PurpleFoot721 (08-21-2018)
Old 08-20-2018, 02:10 PM #4
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

Quote:
Originally Posted by annabanana123 View Post
I am newly diagnosed and trying to find recommended treatment plans to stop the spread of CRPS. I've read in several places that if you catch it in the first year you can acheive remission but none are really clear in exactly how to do this. Has anyone here been able to accomplish this and what did you do? What kinds of regimens are you all on today? My pain management doctor has suggested a few different combinations and I'm trying to weigh pros and cons prior to my appt next week. If it makes a difference my CRPS is in my lower right leg, below the knee.
Try low dose naltrexone. Investigate bone infusions, neridrondate or pamidrondate, aqua PT. Mirror work. Desensitization. Checkout the site by Micheal Moskewitz Neuroplastix.
BioBased is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PurpleFoot721 (08-21-2018), shelbie4u (08-30-2018)
Old 08-21-2018, 08:59 AM #5
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Quote:
Originally Posted by BioBased View Post
Try low dose naltrexone. Investigate bone infusions, neridrondate or pamidrondate, aqua PT. Mirror work. Desensitization. Checkout the site by Micheal Moskewitz Neuroplastix.
Thanks all!! I saw my pain management doctor today to begin treatment for the CRPS. We are going to start with aqua therapy and desensitization as well as mirror therapy to see if it helps. She also switched up my medications. They now have me on zipsor (diclofenac potassium) and hydrocodone. We will start Lyrica or Gabapentin at my next appointment if this isn't enough relief. Since I'm only 3 months in she is hopeful the therapy may do the trick but we'll see. We did discover my body doesn't process codeine so that's why tylenol 3 wasn't really effective.

Fingers crossed, I'm just starting down this long road...
annabanana123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (08-21-2018), birchlake (08-25-2018)
Old 08-29-2018, 11:20 AM #6
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by annabanana123 View Post
Thanks all!! I saw my pain management doctor today to begin treatment for the CRPS. We are going to start with aqua therapy and desensitization as well as mirror therapy to see if it helps. She also switched up my medications. They now have me on zipsor (diclofenac potassium) and hydrocodone. We will start Lyrica or Gabapentin at my next appointment if this isn't enough relief. Since I'm only 3 months in she is hopeful the therapy may do the trick but we'll see. We did discover my body doesn't process codeine so that's why tylenol 3 wasn't really effective.

Fingers crossed, I'm just starting down this long road...
Hang in there. I myself am on Neurontin (Gabapentin) & buprenorphine pain patches (+ sublingual buprenorphine) since 2004; I have chronic CRPS (both legs), which means it's never ever going to leave me. Oh well, it is what it is. This September I will have this 23 years, since the age of 23.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Reply

Tags
combinations, crps, plans, suggested, treatment

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Parkinson's sufferer plans record-breaking ocean row to reveal clues for treatment - NewsBot Parkinson's News 0 04-08-2017 04:30 PM
Medicare Audits Show Problems in Private Plans...RX Plans Stitcher Parkinson's Disease 0 10-07-2007 08:36 AM


All times are GMT -5. The time now is 02:45 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.