Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-23-2018, 03:21 AM #1
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Quote:
Originally Posted by annabanana123 View Post
Saw PM today and she's upping my doses all the way around, including frequencies. Hopefully it will be helpful. She also mentioned I may be a candidate for a spinal cord stimulator but I'm hesitant to go that route. It freaks me out to have something implanted in my spine honestly and I'm hesitant to do anything that involves more invasive procedures since all of this originated from a surgery. I'm also going to a neurologist to do some nerve conduction studies to see if they can identify which nerves are the most impacted and maybe do a sympathetic nerve block, but same concerns from me.

Not really sure what the right answers are and the lack of concrete information makes it hard for me to make decisions. Anyone else suffer from analysis paralysis? Any thoughts or insights on the above options? I'm hoping med increases will be sufficient and it won't come to a SCS or block.
I also didn't want to go that route, and I made it abundantly clear to my pain doctor that I didn't want an implant and I didn't want blocks - so we just stuck to medication (pain patches + Neurontin mainly).

It is hard to make decisions around your health, but your doctor has to be willing to work with you on this. Voice your concerns to her/him clearly.

And it is totally understandable that you don't want more surgery if it all stemmed from surgery.

Good luck to you!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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