Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-23-2018, 03:25 AM #1
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Originally Posted by annabanana123 View Post
My PM doctor is recommending a sympathetic nerve block (or blocks?) for my CRPS. I have browsed posts on this site and seen everything from it cured my life to it made it worse so I'm asking for more updated information since it's been some time since others posted. If you've had one 1) what can I expect (Can I really go back to work that afternoon?? How long does it take? Did you get sedated? Does it hurt? How was your recovery?) 2) did it help or make things worse? and 3) would you do it again. Thanks in advance!!
I really didn't want to go the block-route because I had read several places that if a block should go wrong on RSD, it messes with the sympathetic nerve system so bad that it could potentially worsen the RSD. So if one doesn't go well, it could be a potential hazard.

I don't know if insights around this have changed in recent years.

I do know, however, that they get done, and routinely at that!
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 10-23-2018, 08:08 AM #2
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I really didn't want to go the block-route because I had read several places that if a block should go wrong on RSD, it messes with the sympathetic nerve system so bad that it could potentially worsen the RSD. So if one doesn't go well, it could be a potential hazard.

I don't know if insights around this have changed in recent years.

I do know, however, that they get done, and routinely at that!
Thanks Marleen!! What combo of pain meds are you using today instead? My new regimen is helping and definitely heading in the right direction but not 100% yet. I think I may need some sort of long acting opiate as opposed to IR since I only get a set period of relief with that.
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Old 10-25-2018, 04:23 PM #3
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I had a couple of blocks. The first was a little more than 6 months after my injury and it had very little impact on my rsd...the temperature changes were reduced significantly afterwards but pain remained about the same. No negative reactions. 2 years later I had a series of blocks done...and the last block caused me to get worse and my rsd to spread to almost full body. I am mad at myself because I let the dr bully me into it when I didn't really want the treatment...but it's on me for letting myself get pushed around. I think getting worse is pretty rare...and any treatment can make you worse so this is not a huge thing to worry about...but it is a risk even if a small one and it does happen. Blocks seem to generally be MOST effective in the first 6 months and can help people achieve remission. But like everything else you need to look at the positives and the negatives and decide if it's worth the risk. I had bad luck but far more people do have success and relief from the treatment.
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