I do not know of any. Many people have no idea what CRPS is. In fact I am looking for a neurologist who is versed in CRPS. I am thinking of changing my pain management doctor as well as he took me off of one medication that helped me through the night because I was having cognitive difficulties. The more research I have done says it is because CRPS affects the kombucha system of the brain. At least I am not going insane. Please friend me as I am not very familiar with how to do this on the site. I will post to see if there are any other people in our area or if there is a group around here.

There are very few specialists. One is Annie Oaklander at MGH, but I could never get an appt to see her, even with a letter from my doctor. Another is Roberto Feliz in Hyde Park. He has YouTubeVideos. I think he is likely a good doc.

I like my docs, but would not recommend them, because I think they know very little. I would like to try ketamine, for instance, but I have repeatedly been told they don’t use that anymore. I know this is not true based on FB posts.

I just read that ketamine cream can help with the cold limb problem, perhaps you could ask your provider for it.

I friended you.