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CRPS and boots

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Old 11-27-2018, 10:07 AM   #1
Mlb3815@gmail.com
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Default CRPS and boots

There are a lot of suggestions for footwear in forums; however, I cannot find anything on winter boots. My foot is extremely cold and I live in New England. I cannot afford Uggs. I had arthscopy and I have a lot of sensitivity and neuropathy. I have CRPS so comfort is also an issue. Any suggestions.
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Old 11-28-2018, 07:27 AM   #2
annabanana123
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Have you checked somewhere like Walmart or Target for knock off uggs? I have some I got at Target a couple years ago.

Boots are hard. I'm doing aggressive desensitization to be able to wear socks/shoes/pants etc which is helping but may not for everyone. I can wear boots again since starting it but couldn't for a while.
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Old 11-30-2018, 06:43 PM   #3
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I second Anna’s suggestion I wear mostly sketchers and in the winter a faux Ugg boot from Costco. I look for the most lightweight items with roomy toe boxes, fairly flat with not much toe spring.
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Old 11-30-2018, 08:06 PM   #4
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Thank you. I bought a pair of faux uggs. I wear them with thermal and cabin socks and my foot is still cold. I guess I’ll keep trying a few more and see how it goes.

Thank you both.
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Old 12-03-2018, 04:31 AM   #5
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Quote:
Originally Posted by Mlb3815@gmail.com View Post
Thank you. I bought a pair of faux uggs. I wear them with thermal and cabin socks and my foot is still cold. I guess I’ll keep trying a few more and see how it goes.

Thank you both.
I used to think the coverings kept the cold in like an insulated cooler, especially if there is not enough blood flow to the limb. I found that if I warmed my feet on a heating pad before I put on the boots I had better results. Also I stomp my feet, like I am crushing a can, to get blood flow and increase my hip density.

You are in my area. Do you know of any local
“meet up” groups?
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Old 12-03-2018, 07:23 AM   #6
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I do not know of any. Many people have no idea what CRPS is. In fact I am looking for a neurologist who is versed in CRPS. I am thinking of changing my pain management doctor as well as he took me off of one medication that helped me through the night because I was having cognitive difficulties. The more research I have done says it is because CRPS affects the kombucha system of the brain. At least I am not going insane. Please friend me as I am not very familiar with how to do this on the site. I will post to see if there are any other people in our area or if there is a group around here.
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Old 12-03-2018, 11:44 AM   #7
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Quote:
Originally Posted by Mlb3815@gmail.com View Post
I do not know of any. Many people have no idea what CRPS is. In fact I am looking for a neurologist who is versed in CRPS. I am thinking of changing my pain management doctor as well as he took me off of one medication that helped me through the night because I was having cognitive difficulties. The more research I have done says it is because CRPS affects the kombucha system of the brain. At least I am not going insane. Please friend me as I am not very familiar with how to do this on the site. I will post to see if there are any other people in our area or if there is a group around here.
There are very few specialists. One is Annie Oaklander at MGH, but I could never get an appt to see her, even with a letter from my doctor. Another is Roberto Feliz in Hyde Park. He has YouTubeVideos. I think he is likely a good doc.

I like my docs, but would not recommend them, because I think they know very little. I would like to try ketamine, for instance, but I have repeatedly been told they don’t use that anymore. I know this is not true based on FB posts.

I just read that ketamine cream can help with the cold limb problem, perhaps you could ask your provider for it.

I friended you.
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Old 12-08-2018, 12:14 AM   #8
LokiLuOllie
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Red face Boot/ Socks/ Warm stuff

Quote:
Originally Posted by Mlb3815@gmail.com View Post
There are a lot of suggestions for footwear in forums; however, I cannot find anything on winter boots. My foot is extremely cold and I live in New England. I cannot afford Uggs. I had arthscopy and I have a lot of sensitivity and neuropathy. I have CRPS so comfort is also an issue. Any suggestions.

I bought Bear Paw boots they are very similar to Uggs. They have some that are rather expensive but the pair I got were like $40. I got them at Shoe Dept. I believe those are all over the east. You can also just search Bear Paw boots and look for the less expensive ones. If you are able to wear socks Heat Holders are AMAZING. My CRPS is in my legs but it started in my left knee so that's my worst area. They make joint warmers. The cold air really hurts my knee badly so I figured I'd give it a shot. Now I refuse to go outside without it on. They are lined with "fur like" material and are very soft and don't seem to bother my skin. I also bought their leggings which are great! I will warn you though. If you are a bigger person as I am when the xl leggings came in the mail and I opened them I was like "hahaha yeah, no way!" but I tried them on and they fit just fine. I think they are meant to look small and stretch out. The socks come in 3 levels of warm. I haven't tried them yet but if they are anything like the leggings and joint warmers, they will be wonderful!
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