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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Questioning new diagnosis

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Old 02-09-2019, 11:17 PM   #11
Becca71's Avatar
Join Date: Mar 2016
Location: CA
Posts: 203
My Mood: Questioning new diagnosis

Originally Posted by vivs001 View Post
Hi, thank you for all these replies! I didnít check in for a little while because this site was causing a lot of anxiety, but Iím feeling calmer now that Iíve gotten in to see the right doctors. Just to update, I have finally seen the neurologist who ruled out nerve injury. Saw the pain mgmt doctor who seems knowledgeable about CRPS, and I am going for my first sympathetic nerve block injection tomorrow. That plus gabapentin and referral to a PT who treats CRPS. There is a also neuropsychologist in my area as well who treats CRPS, but I havenít seen her. Iím not sure if I should? Itís such a struggle to find the right providers, get on their schedules, get approvals from insurance, etc. I have never been so pushy in my life just to get care in a timely fashion! A very stressful situation... Hopefully I am still early enough for some of this stuff to help.
A sympathetic nerve block this early can (no guarantees) really help stop CRPS in its tracks. I.E. at the very least help prevent spreading, and slow down the progression. This is why it is SO important to get diagnosed ASAP. Get PT as soon as you can, and meanwhile just try to do whatever gentle movement you can (nothing that hurts!!!). If you can walk, or at least use crutches and bear some weight, don't stop.
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