Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-18-2020, 07:17 PM #11
Motormouthj Motormouthj is offline
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Default Lots of counseling

When I was diagnosed nine years ago I went through lots of depression and anxiety which transferred to my family. I didn’t want to hear about it’s all in your head. But I figured out that I was pushing everybody away because I felt worthless I can’t do what I used to do and when you feel that way you don’t know who you are anymore. I finally did get counseling and meds for the depression and anxiety. But my family also had to. Because there’s no wayFor sufferers to explain what they’re going through plus there’s no way for your love ones to understand. I wish you The best part time, and Maybe this could work for your family too.
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Old 01-25-2020, 05:51 AM #12
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Dear Kim,

To give you an idea.

Chronic CRPS pain is classified as equal to non-terminal cancer pain, more severe than any untrained first delivery.

So it's like being in constant child birth.

I'm sure you have explored all the options, but is he in constant care with a pain management team? I went the medical route (gabapentin, pain patches) and didn't have surgical implants (stimulator). Because that was the best way for me.

Everyone has to see what's the best option for them.

It doesn't, however, sound to me as though his pain is under control. That is the first thing to focus on.

I would have a *serious* discussion with his pain management doctors, because the pain should be manageable.

Good luck!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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