Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-24-2019, 03:42 AM #1
Tiago Tiago is offline
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I'm so sorry about your situation =/

Here in Portugal, you can pay around 80 to 100 euros and be seen by a private specialist in a timely manner. No need to wait for long periods.

Also, over here, any Doctor can prescribe any drug. My wife has been prescribed opioids by the Gp (which actually made her worse - possible due to their activation of nmda receptors).

Also, her orthopedist, the one that diagnosed her, prescribed her alendronate after we showed them about 3 different pubmed studies on the effect of alendronatic acid on crps/rsd. He had never prescribed alendronate before becuase it's not his area.

I'm not sure how different it works in the UK, but if I were in your situation, I'd ask around for a Doctor known to be a specialist in Crps/rsd and known to prescribe the drugs you need and I'll make a private appointment with him.

Here, we even have a more expensive private doctor that charges about 120 euros for an appointment and will prescribe you LDN without a problem.

Thanks to that my wife will be starting LDN soon.

Also, for Sleep, you may won't to try high dose tryptophan (an aminoacid) and melatonin.
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Old 07-04-2019, 09:59 AM #2
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mary jane mary jane is offline
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mary jane mary jane is offline
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Quote:
Originally Posted by Tiago View Post
I'm so sorry about your situation =/

Here in Portugal, you can pay around 80 to 100 euros and be seen by a private specialist in a timely manner. No need to wait for long periods.

Also, over here, any Doctor can prescribe any drug. My wife has been prescribed opioids by the Gp (which actually made her worse - possible due to their activation of nmda receptors).

Also, her orthopedist, the one that diagnosed her, prescribed her alendronate after we showed them about 3 different pubmed studies on the effect of alendronatic acid on crps/rsd. He had never prescribed alendronate before becuase it's not his area.

I'm not sure how different it works in the UK, but if I were in your situation, I'd ask around for a Doctor known to be a specialist in Crps/rsd and known to prescribe the drugs you need and I'll make a private appointment with him.

Here, we even have a more expensive private doctor that charges about 120 euros for an appointment and will prescribe you LDN without a problem.

Thanks to that my wife will be starting LDN soon.

Also, for Sleep, you may won't to try high dose tryptophan (an aminoacid) and melatonin.
Is this in Lisbon ?
Thank you
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