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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Doctors have dismantled my treatment plan and refuse to fix it....

 
 
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Old 07-30-2019, 04:03 AM #9
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Originally Posted by Cpugh67126 View Post
Your meds are absolutely necessary so that you can live some type of life. After 24 years with this disease if I did not have my pain meds I would have no functionality whatsoever nor would I ever smile. If a doctor knows you have this disease and will not help you be able to at least bear some of the pain, OR if they do not understand you need meds then they do not understand RSD whatsoever and do not need to be treating it. I had injections for over 10 years and no more for me. So many steroids gave me fatty tumors that were surgically removed. Try a internal medicine doctor if you have not. Every pain specialist I went to just wanted to make money giving me injections or tried to push me into getting a spinal cord stimulator. Hold fast please you need your meds. Many blessings, Sue 🥰
My pain specialist was fine, thank God! When he heard I didn't want blocks or a stimulator, he kept it to medication only even though he did try and push the issue a few times. But since the medication worked to ease the pain on me (gabapentin / buprenorphine), and it continues to work, they stick to that.

I have been on these medications since 2004, and so, 15 years come September this year! Even though I have CRPS/RSD since 1995, so 24 years come September.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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