Thanks Friends! I am going tomorrow afternoon again for PT I will write you all a reply on your posts when I get back tomorrow. I love ya all and I want to thank each and everyone of you again when I get back from PT boot camp.. LOL

Hi Desi,

My experience has been that if it causes more pain, it's ultimately not going to help me and might even make me worse. It was a physical therapist that aggressively treated my knees & caused the RSD spread there. I'm not saying that all PTs are bad, but I had a bad one. Prior to her, I had a good OT that treated the RSD in my hand. She did have me use a TENS at a very low level and constant modulation on my arm. She said the intent was to disrupt the pain gate. The TENS was not put on the RSD hand. I can't say that it really helped but sometimes I use it now on tense shoulder muscles. I've tried it on my sacro area but it makes the pain worse there.
I wish PTs knew more about RSD. I just don't trust them anymore. I hope yours can help you.
Linmarie

Desi? what happened?? we are all curious???

Hi there!! Thank you all so very much! thanks Jacquelina, Tayla, Sue K., Mary, Christine, Carose, Frogga, Imahotep, Jose and Linmarie!! Your all the "BEST" sorry it took this long to get back to you, I went school shopping with my hubby and daughter for her school clothes. LOL
Ok.. I went to PT at 4:00 and as soon as I got there, I went to the desk(where you sign in) The girl there said ;"Yes, can I help you?? I said;"yes, you can, I need to talk to the Dr." so, the girl says, he's with patients.She said I will tell him that you need to see him, I will make a note of it. I said, ok.. I have a PT appointment at 4:00 (His office and the PT place is in the same building, right across from my Dr.'s office).. he can see me in PT Ok, I go into PT and Sue (My PT therapist) She starts to get the heating pad all ready to put on me and as she's doing this, in walks my doctor! He smiles, comes right over and said;"Yes, you wanted to see me??" I'm like...yes, Dr. I do NOT want to use my Tens unit anymore, as this hurts me. he's like what do you mean a tens unit.. and Sue's face got all red.. and I mean RED!! So, I say; well.. and before I can finish, Sue said to Dr. Engle.. oh.. ummmm.. I thought I would try this on her to see how she would feel on this. Here, he said .. Sue I did not give the ok for her to use this, may I see you please?? So he's talking to her. Darn, wish I could have heard their conversation!!! So, he comes back and asks me how I am doing. I told him everything about how I hurt more with the pain from the tens, how doped up I am from taking 600 mg. of the Neurontin 3x a day. He was so nice, changed my dose, left it to more of a dose in the evening before bed. He said how sorry he was that nothing was called to his attention about using a tens on me. ok.. So, I go to PT and let me tell you, she was the nicest PT for the rest of my session! I feel I learned a lot by this, was to speak up!! I want to thank you for telling me to speak up (I'm sorry I forgot who told me this, you know who you are, so a HUGE THANK YOU!!!) Sue will be on vacation.. AGAIN! next week, so I will have a guy named deven doing my PT this coming wednesday. Hope he's cute! HA! HA! HA! had to say that!! I bad! LOL
Anyway, that was what happened. Now, as far as PT went she said it again, I shouldn't dwell in my mind about it spreading! I then said"You make it sound like it's all in my head"! She just shook her head no, then said oh, no that's not what I meant! I then said what, then?? She dropped the subject like a hot potato Hmmmmmmmmm..... wonder why!! I said, also you mentioned about that guy getting better with PT??(remember, I mentioned in my post about the guy who sprained his ankle? had several PT sessions?) She said that's right, he's all better and doesn't need to come here no more!! I said;"ohhhhhhhh.. I see, he's all better?? She said yes. I said you mean he's in remission?? she said;"No all better"! I then said;"Ya know, RSD effects everyone different, and no two people are the same. He may be in remission, may come back?? She said no, he's done with PT, he is now working! I said;" "he's done with the Dr. here"? she said I don't know he didn't see our Dr.'s here. she then went on to say, well he may still need his medication. I said, then he still has it?? she said Oh, that I don't know?? So, I am hearing two stories to this one. Well, again, thanks friends.. you truly helped me by having me speak up, and I feel mighty good about this. When she starts getting too rough with PT on me I will say STOP IT... YOUR HURTING me! Thanks again all who replied... your "AWESOME" I FEEL MIGHTY GREATFUL" FOR Having the guts to stand up to this PT lady because of all your help!! Love and to ya all!! Love, Desi

You go Captain Desi
I am so very proud of you

You are on the way to the best medical care for you !!!!!

much love

GnP

I definately agree with the others- Stop the tens unit- I would never do anything that makes my RSD feel worse. Unfortunatley a lot of professionals including PTs do not really understand RSD- They cant get thru the "work thru the pain" concept. I have had it with them and many docs who just don't get what we are going thru and what makes us worse....

Deb

Desi,

Way to go!

Linmarie

"Captain Desi".. LOL Thanks Admiral GnP for all your good sound advice!! Your a good friend and your always there to give somone a lift when they need it, for this I applaud you!! salute! :0) Love ya!! Desi

Thanks Deb.. I already stopped the darn thing!! LOL

Thanks so much Linmarie!! I needed all the advice I could get and you friends were giving it to me good!! yea!! Love ya!! Desi