Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-24-2019, 11:09 PM #11
gigicnm gigicnm is offline
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Join Date: Sep 2014
Location: Massachusetts
Posts: 55
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gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
8 yr Member
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I have to agree with the above recommendations to try water therapy. If you have access to a warm water pool (usually associated with physical therapy offices here in the US) try that, if not maybe try walking in a local pool. You can use a flotation device to aid in balance and to take some pressure off of your legs.

With CRPS if you don't use it you lose it. It is very important to do range of motion exercises and some weight bearing activity daily.

I have a friend in France that put an infrared sauna in her home because using it really helped with that burning, cold ache. She found that the relief lasts longer than a heating pad.

I also tried Scrambler/Calamar therapy and didn't get any lasting results. What works for me is injections during a flair and ketamine every three months. The problem with ketamine is that it's dose-dependent and there is no consensus on what dose is the best. For me, ketamine alone did not work. Once my doctor added lidocaine in with the ketamine infusion my pain was dramatically improved. I get 500mg Ketamine and 100mg lidocaine infused over several hours every three months. I recently tried 250mg ketamine, 100mg lidocaine, and a steroid. That dose didn't work as well for me. I know many providers use a significantly smaller dose. Finding a good pain doctor that either knows something about CRPS or is willing to learn is really important. It has taken me almost seven years to figure out what works for me. Don't give up.
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