Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-20-2019, 01:12 AM #1
focusedd focusedd is offline
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Default Could this be CRPS?

Im 22 years old. Engaged. So in january i thought i had testicular cancer cause i found some tiny tiny thing on my right testicle, googled and scared myself to death and my balls were aching and my stomach so i went to a urologist who said its all fine and good and every pain stopped. Then i hurted my knee on the beginning of february, and it was painful and it burned so bad for a month and a half, i was taking glucosamine, chondroitin and indomethacine, and was going to physical therapy and electrostimulation of muscles around knee. The burning started spreading from my knee over to my other knee and then calves and feet and also thighs. I also got new insoles for my super flat feet around that time. I was treating my anxiety with xanax and clonazepam, my feet were burning and cold at the same time, my whole legs were burning i was terrified so i googled and found MS. I also found a guy on reddit with the same exact symptoms and i thought that is it its over so i went and did the MRI of brain and spnal cord and it was all fine. My pain disapearred. Then the twitches came, and they were full body so i googled and found about ALS, did the EMG was fine, the twitches didnt stop so i found out about BFS, then the sensory **** on feet kinda started to come back so i found on Wikipedia that 82% of people with SFN have benign fasiculations. And here i am scared ******** of SFN, waiting for my appointment. I am taking Tramadol and Lyrica and now i have started to get stinging sensations all over body, burning forearms, suprisingly my palms and hands are not affected, patches of skin that kinda feel tender, raindrop sensations... Overall its hell going on inside me. I have talked to 7 Neuros at this point and not one has even thought of SFN and i had to beg until one of them gave me a recommendation to do QST. So this is my story, and please all of you that are dealing with this a long time, i trust your opinion and maybe you can find a cause from my story and tell if its CRPS? Thank you
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Old 06-20-2019, 09:46 AM #2
CRPSinSC CRPSinSC is offline
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I am just a girl with CRPS and absolutely no medical background, so I really cant help you much with a dx, which is, according to what you wrote, what you are earnestly seeking. I absolutely dont blame you.
What I can tell you about CRPS is that it's rare, and even more so, it often starts with an injury to one area where CRPS sets in, and then for some, it can spread to other areas. So my first question is did you injure some area. That said, not all CRPS cases start with an injury, just a majority of them.
Also, the spread in CRPS from one limb to another doesn't happen fast for most of us...it moves to other areas over years....say 1'st injury 2000, and spread 2006 or even later....at least the people I know who have CRPS have experienced a spread years after the initial onset in one area.

I wish I could help you figure out what is going on with you, but think it's best you see doctors for that. If none of the doctors are linking your symptoms to each other, maybe it would be easier to look at each situation and see if it's resolved...if so, maybe it was isolated...and is unrelated to the others? I say that because we begin to look like hypochondriacs to doctors when we really aren't.....we are using our non medical mind to give all information and see what "comes back" from them.......
thinking out loud here about why you might not be getting the feedback from them you need to figure out what's wrong???? I hope you'll find out.
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Old 06-20-2019, 09:55 AM #3
annabanana123 annabanana123 is offline
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It's possible. I would get evaluated by a doctor with experience with CRPS but also have them rule out other things. CRPS is almost a diagnosis of exclusions and most often begins with an initial trauma or surgery to the area but it's not impossible to have it without that. I take lyrica and hydrocodone and still have burning, for what it's worth. I hope you get some answers soon!
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Old 06-20-2019, 10:13 AM #4
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I had a trauma to my left knee. Was hurting so bad for 2 months and then it just spread rapidly to my legs and now my body...
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