Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-03-2019, 01:57 PM #1
msorenson2219 msorenson2219 is offline
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I just finished the "trial" SCS surgery. They require it in order for insurance to pay for the full surgery. The only difference is the battery was kept taped to my back instead of inside my body.

I would say it got rid of 60% (on average) of my pain, which was much needed relief! Sometimes it felt like 20%, but other times it was more like 90%. It was a bit tricky getting the nodes to the correct level at first, but when they adjusted them, it felt great! The relief was immediate. When they pulled the trial nodes out, the burning started up instantly.

I know recovery from the full surgery is a bit difficult. I expect back pain for a while. Also, not being able to bend or twist. You can't lift anything over 5 pounds. This recover period goes on for a few weeks while the nodes scar over.

Even with that, I am going for the full SCS surgery in a few weeks! I was able to have more of a normal life with it, and I think it will be worth the weeks of recovery from the surgery. I have CRPS in both legs/feet and in one arm
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birchlake (07-03-2019)
Old 07-04-2019, 07:59 AM #2
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Quote:
Originally Posted by msorenson2219 View Post
I just finished the "trial" SCS surgery. They require it in order for insurance to pay for the full surgery. The only difference is the battery was kept taped to my back instead of inside my body.

I would say it got rid of 60% (on average) of my pain, which was much needed relief! Sometimes it felt like 20%, but other times it was more like 90%. It was a bit tricky getting the nodes to the correct level at first, but when they adjusted them, it felt great! The relief was immediate. When they pulled the trial nodes out, the burning started up instantly.

I know recovery from the full surgery is a bit difficult. I expect back pain for a while. Also, not being able to bend or twist. You can't lift anything over 5 pounds. This recover period goes on for a few weeks while the nodes scar over.

Even with that, I am going for the full SCS surgery in a few weeks! I was able to have more of a normal life with it, and I think it will be worth the weeks of recovery from the surgery. I have CRPS in both legs/feet and in one arm
Mine is in both legs (disability) and 2 arms (still being treated with calcitonin, Belgium's main form of treatment).

I hope your surgery goes well.

Keep us posted.

And welcome to the boards, BTW!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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