Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 07-30-2019, 03:58 AM #1
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by Cpugh67126 View Post
Never. I have had this disease for almost 24 years. I ran a support group for years by email. From all I have seen through the years I’d never get one nor recrecomend one. Several people in my group had them put in and all had problems with leads coming disconnected, infections also many had worse problems with their RSD. Anytime you get something implanted into your body it is very foreign and not natural. Remember many doctors get nice bonuses, trips, etc for every spinal cord stimulator one of their patients may get. I have seen horrible infections caused by the stimulators. Please beware and informed. Always ask and know what all risks could be please before getting one. They do not make the pain go away and can make you much worse. Wishing you the best, Sur
I also had so many people tell me these devices were "fine" IF they worked, the least amount you bend wrong or fall, leads can become disconnected or shift making the contact less than ideal.

No; not for me.

Also my RSD was too far advanced for this to still be recommended to me as a valid "treatment" option (even though it only deals with pain).
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Reply

Tags
crps, horrible, period, recovery, tolerable


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
CRPS type 2 and surgery swimtime Reflex Sympathetic Dystrophy (RSD and CRPS) 16 11-06-2015 02:04 PM
CRPS & Surgery tdggal1980 Reflex Sympathetic Dystrophy (RSD and CRPS) 7 01-04-2015 12:23 PM
CRPS and oral surgery mtgoats Reflex Sympathetic Dystrophy (RSD and CRPS) 2 12-15-2014 07:59 AM
Crps and dreadig surgery KWolter Reflex Sympathetic Dystrophy (RSD and CRPS) 4 10-12-2013 11:01 PM
RSD/CRPS and surgery islandgrl Reflex Sympathetic Dystrophy (RSD and CRPS) 35 07-11-2009 12:54 AM


All times are GMT -5. The time now is 05:16 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.