Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-20-2019, 06:51 AM #1
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default hardware removal

Has anyone here had hardware removed in their CRPS limb? I saw my ortho yesterday and one of the screws is about 1/2 out so I'll be having them all removed. The initial surgery is what triggered my CRPS and we will follow the protocols for surgery w/ CRPS but I'm wondering how you all fared. Did you need an increase in pain meds for post op management if already on opioids? My PM says I will, of course, but curious what everyone's individual experience was. Thanks in advance!
annabanana123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (11-04-2019)

advertisement
Old 11-04-2019, 11:50 AM #2
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Quote:
Originally Posted by annabanana123 View Post
Has anyone here had hardware removed in their CRPS limb? I saw my ortho yesterday and one of the screws is about 1/2 out so I'll be having them all removed. The initial surgery is what triggered my CRPS and we will follow the protocols for surgery w/ CRPS but I'm wondering how you all fared. Did you need an increase in pain meds for post op management if already on opioids? My PM says I will, of course, but curious what everyone's individual experience was. Thanks in advance!
I wanted to update this for others facing hardware removal. I had them removed 1 week ago and have managed without increasing or changing my pain meds other than doubling my celebrex dose. I'm not advocating for this but my PM and ortho were both kind of useless in deciding how to manage it so I did it this way. I would definitely recommend increasing the dose if you can get your doctors to work with you because you could avoid some pain but it also hasn't been so horrible I contemplated an ED trip or anything.
annabanana123 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (11-04-2019)
Old 11-04-2019, 06:53 PM #3
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
10 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
10 yr Member
Default

Hi Annabanana123,

Good to hear that you got through that hardware removal with no increase in pain!

I also had hardware removed, for me it was in my CRPS toe. Originally, I had the front joint in the big toe "fused" because of lack of cartilage and pain. That fusion surgery is what started my CRPS.

During the long period of time where we were all trying to figure out why I was having increased pain after the fusion surgery, and because the CRPS symptoms (toe inflammation/pain) were about the same length as the fusion screw itself, my surgeon removed the screw after we were confident that the bones were solidly fused. Because the screw was right under the surface of the tip of my toe, he did it as a procedure in his office, rather than put me through the hassle and expense of a surgery. Screw came right out, no effect whatsoever on my pain level.

Removing that screw didn't help me at all, but it didn't hurt me either...except for a little discomfort of the procedure of removing it.
birchlake is offline   Reply With QuoteReply With Quote
Old 11-05-2019, 11:52 AM #4
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

That's about what I'm finding. Minor increase in pain currently but I'm only 1 week post op and apparently doing too much too soon per the surgeon (but I have a full time job, a child, dogs, etc AND they told me weight bearing as tolerated. I guess my tolerance for pain is a lot higher than average...imagine that??!?!? LOL
annabanana123 is offline   Reply With QuoteReply With Quote
Old 11-11-2019, 08:49 AM #5
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

I just had "plain" knee surgery in 1997, so many years ago, this was before I was diagnosed; I was diagnosed in 1998. I didn't have any hardware removed, but I came out of surgery with a gray/black leg. The nurse saw it and made me get back into bed asap. The doctor refused to visit. So... there you go. I was not on any medication for CRPS back then. So... can you imagine the pain I was in?
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (11-11-2019)
Old 11-13-2019, 03:13 PM #6
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Quote:
Originally Posted by CRPSbe View Post
I just had "plain" knee surgery in 1997, so many years ago, this was before I was diagnosed; I was diagnosed in 1998. I didn't have any hardware removed, but I came out of surgery with a gray/black leg. The nurse saw it and made me get back into bed asap. The doctor refused to visit. So... there you go. I was not on any medication for CRPS back then. So... can you imagine the pain I was in?
That is horrible!
annabanana123 is offline   Reply With QuoteReply With Quote
Old 11-14-2019, 02:07 PM #7
crpsspouse83 crpsspouse83 is offline
Newly Joined
 
Join Date: Nov 2019
Posts: 3
3 yr Member
crpsspouse83 crpsspouse83 is offline
Newly Joined
 
Join Date: Nov 2019
Posts: 3
3 yr Member
Smirk

Glad to hear you didn't have much more pain with additional surgery! My husband has CRPS in his hand and has had to have surgery after his diagnosis. The surgeon and pain mgmnt doctor were in communication the whole time. They decided to give him stronger pain meds for after the surgery in which time he was to stop taking his normal pain meds. This was years ago. Now we have found out that he has trigger finger, broken bone in hand, and enlarged tendons. So another surgery! he is extremely stressed out about it. I will update on how his pain meds are handled once he has the surgery. Best of luck to you. Also, he has recently tried CBD oil (w/ no THC) for comfort. He says it relaxes him but doesn't really help with the pain. Were hoping to try medical marijuana after this surgery as he is needing something different for pain relief.
crpsspouse83 is offline   Reply With QuoteReply With Quote
Reply

Tags
crps, hardware, individual, removed, surgery

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
DBS hardware/electronics ownership ? toyL Parkinson's Disease 0 02-27-2012 12:14 PM
Having hardware removed. hisbeauty4ashes Spinal Disorders & Back Pain 1 01-27-2011 07:59 PM
Unstable C-spine: C2-C3 with 3 hitting my hardware from C4-6 froglady Spinal Disorders & Back Pain 4 01-17-2011 01:37 PM
Acdf 3 levels hardware and fusion..anyone else? cookieflowerw Spinal Disorders & Back Pain 4 10-16-2009 11:55 PM
Question About Hardware Removal GJZH Spinal Disorders & Back Pain 2 10-01-2007 01:21 AM


All times are GMT -5. The time now is 06:59 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.