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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Roll call!

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Old 12-01-2019, 06:15 AM #1
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Default Roll call!
How is everyone doing?

For me, one day at a time is best for me. I have had this condition this September 24 years. Been on a pain management program since 2004.

It's been a long long time and that program is still doing well for me.

So...

How are you guys?

I thought it was a good question to ask, especially so close to and around the Holidays.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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full_moons_of_hope (12-26-2019)

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Old 12-02-2019, 10:08 AM #2
annabanana123 annabanana123 is offline
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I'm here! I'm doing ok - much like you, one day at a time. I have only had this for about 1 1/2 years now so it's still very much a learning experience in terms of what does and doesn't set it off. I am lucky to have a great pain management team.
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full_moons_of_hope (12-26-2019)
Old 12-02-2019, 06:48 PM #3
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Stable for me! I've had CRPS since September 11, 2009 so just over a decade now.

I have a daily 3 hour therapy regimen that I do every day without fail. I credit this regimen to my stability. This regimen includes 15 minutes of mindfulness meditation which has been quite helpful...not in reducing the pain, but in helping how I process and handle pain.

While CRPS has been by far the most difficult health issue of my 61 years, when you can call CRPS "stable", I think most of us would consider that a big win!
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Old 12-04-2019, 09:17 PM #4
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Default Bad
Stable in bad condition because I can't take antiflamatory drugs anymore because of kidneys so my pain is up and just had my 40th birthday of this condition and I'm still here fighting an not giving up schedule to have my 164th Nerv block on the 19th .
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Old 12-07-2019, 10:46 PM #5
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I'm hangin' in there.

I can do almost anything given enough time.

It can be hard to keep a good attitude but I can even do that with enough time.

It's been 21 years now. The RSD seems to be retreating from parts it had won but that's no real relief.
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full_moons_of_hope (12-26-2019)
Old 12-16-2019, 06:48 AM #6
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Quote:
Originally Posted by birchlake View Post
Stable for me! I've had CRPS since September 11, 2009 so just over a decade now.

I have a daily 3 hour therapy regimen that I do every day without fail. I credit this regimen to my stability. This regimen includes 15 minutes of mindfulness meditation which has been quite helpful...not in reducing the pain, but in helping how I process and handle pain.

While CRPS has been by far the most difficult health issue of my 61 years, when you can call CRPS "stable", I think most of us would consider that a big win!
Most definitely!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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full_moons_of_hope (12-26-2019)
Old 12-16-2019, 06:49 AM #7
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I'm glad you guys are here! I'm sure there's more of us out there. If you have a chance to let us know you are still here, please do so!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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full_moons_of_hope (12-26-2019)
Old 01-02-2020, 10:49 AM #8
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Smile I’m in and out here- lurking and working
I’m going into my 4th yr w CRPS. Got lots of good pain treatment and education early on and a SCS which has been a life saver. Still not living the life I want but working towards it. Still on SSDI, but really want to work. Definitely gets lonely at home. I pop in to read how everyone is doing but usually don’t have anything to offer.
But we keep going forward. Thank you for being here.
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Old 01-03-2020, 08:51 AM #9
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Is it just me or does this board seem extra slow lately? I come here every few days to see if there's anything new but there isn't a ton. Hope y'all are doing well with low pain days!
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Old 01-03-2020, 01:03 PM #10
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Quote:
Originally Posted by annabanana123 View Post
Is it just me or does this board seem extra slow lately? I come here every few days to see if there's anything new but there isn't a ton. Hope y'all are doing well with low pain days!
Sad isn't it. Maybe people are on other RSD boards? Because this can't be it, surely.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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