I'm here! I've had CRPS for 21 years in my right arm with progression to my left arm 5 years ago. I had a cervical SCS implanted in Feb. 2015. I still work, but I am miserable.

Last June I started perineural injection therapy in both arms. It's hundreds of injections of dextrose (sometimes with lidocaine too) using ultrasound. It causes a massive flare at first, but then starts to heal the nerves. I've had 3 sets of injections and the symptoms are slowly improving.

I won't lie - it's very expensive since it's not covered by insurance. I spent $8500 last year for the injections, so it's not for everyone. But I wanted to share what I'm doing since we're all looking for a miracle cure.

Painfree hugs to all suffering from this beastly disorder
Lori