Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-18-2020, 07:10 PM #1
Motormouthj Motormouthj is offline
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Default Crps and other joint problems?

I’ve had crps for 9yrs and over the last several years I’ve had to had surgeries on several different non-affected joints. Does anyone know if these can be connected? Or, has anyone had the same degeneration in other joints? I’m lost in medical papers and cannot seem to find the answers.
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Karilee (02-13-2020)

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Old 01-25-2020, 05:54 AM #2
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Quote:
Originally Posted by Motormouthj View Post
I’ve had crps for 9yrs and over the last several years I’ve had to had surgeries on several different non-affected joints. Does anyone know if these can be connected? Or, has anyone had the same degeneration in other joints? I’m lost in medical papers and cannot seem to find the answers.
Maybe go see a rheumatologist. More might be going on. It doesn't always "all" have to necessarily be CRPS or a consequence of it.

When I started to have dizzy spells, they sent me to an ENT. Diagnosis? Menière's Disease (after about a year). But it wasn't "shoved off" on the CRPS automatically.

I think looking for "other answers" might be your best bet!

Good luck!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 02-15-2020, 05:30 AM #3
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Marlene makes a good point. Other things can happen to us. So exploring it like a "normal" person would makes sense. We all experience degeneration of joints as we age. If you think you are experiencing it at a rapid pace then rheumatology is the place to figure that out.
I have found it to be tricky keeping track of what is going on within my body and separating things from crps.
I like to research aspects of this disease and learn as much as I can, but the reality is that there is a lot of unknowns. I would not be surprised if one day it is classified as an autoimmune disease.
I have also tried to take the approach of asking myself these questions, "Does it matter?" "Is it helpful"? I have tried to take this approach to ease my mind. For instance, In my case, my gallbladder started acting up and I had to have it removed. Of course I wondered if the crps caused my gallbladder to malfunction. In that case I asked myself, "Does it matter"? And of course, it did not. Either way it had to be removed and the truth is no one could emphatically say if the crps had anything to do with it.
I guess we all have to approach how we manage this disease as individuals so that is just my coping mechanism. I shared it with the hope that it may also be useful to someone else.
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