Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 06-08-2020, 09:14 AM #11
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

That's great information - thank you!!! Did you stop before surgery b/c you can't take it with opioids? Or was there another reason? Just curious as I'm waiting on an ortho appt for what I suspect will be a knee replacement, ugh . But I can't walk on it and have had 4 surgeries already so...ya know...
annabanana123 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-08-2020, 04:03 PM #12
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

I stopped, because it is a requirement . I assume, because it could interfere with anesthesia and possibly if opioids are needed after surgery. I am sorry to read you are facing more surgery. It’s too much. Much too much.
BioBased is offline   Reply With QuoteReply With Quote
Old 06-16-2020, 07:12 AM #13
Irish's Avatar
Irish Irish is offline
Junior Member
 
Join Date: Apr 2019
Location: Milwaukee, WI USA
Posts: 19
3 yr Member
Irish Irish is offline
Junior Member
Irish's Avatar
 
Join Date: Apr 2019
Location: Milwaukee, WI USA
Posts: 19
3 yr Member
Default

Annabanana123
I am struggling with 2020. Two diamonds in my wedding ring were cracked in late January. It is insured so no biggie there. I took it in for repair. They had to send it to the mfg. Then Covid hit. I still dont have it back. My TKR was cancelled due to Covid. 6 more months of this year to go, It can't end soon enough. Thanks for asking and allowing me to vent my little rant.
Barb
Irish is offline   Reply With QuoteReply With Quote
Old 06-20-2020, 04:52 AM #14
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Who'd have thought we'd have a pandemic on our hands to top it off.

I am taking things day by day, but what else is new?
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Old 06-22-2020, 10:08 AM #15
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Quote:
Originally Posted by Irish View Post
Annabanana123
I am struggling with 2020. Two diamonds in my wedding ring were cracked in late January. It is insured so no biggie there. I took it in for repair. They had to send it to the mfg. Then Covid hit. I still dont have it back. My TKR was cancelled due to Covid. 6 more months of this year to go, It can't end soon enough. Thanks for asking and allowing me to vent my little rant.
Barb
I'm sorry you're struggling so much. 2020 has been one for the record books...and not in a good way, ugh! I hope you get your ring back soon!!

I think I need a TKR but going to try hyaluronic acid injections to see if maybe they'll buy me time first.
annabanana123 is offline   Reply With QuoteReply With Quote
Old 08-16-2020, 10:12 PM #16
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

I have not been on in ages.

My current worker's comp doc is good, but trying to get my methadone filled/covered by wc is a nightmare, so I'm back to just doing it thru Kaiser.

I'm still going through the wc claim. Had another deposition (via Zoom at least!) so that was really no fun. I have no stamina, even for Zoom, had to do it in two sessions. Now they want me to do a vocational eval. That's gonna be fun - not. They are gonna mail me a packet to do when they start the session. Supposed to take up to 4 hours. I can't do ANYTHING for 4 hours. And then they want to talk with me for 2 hours. It is supposed to be from 10:00 on for 6 hours. Yeah. I'll melt/fall asleep. So I'll have to explain, and then just stop I guess.

At least my pain is as well controlled as ever. I am even trying to use my cane at home when I can!
Becca71 is offline   Reply With QuoteReply With Quote
Old 08-26-2020, 10:00 AM #17
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by Becca71 View Post
I have not been on in ages.

My current worker's comp doc is good, but trying to get my methadone filled/covered by wc is a nightmare, so I'm back to just doing it thru Kaiser.

I'm still going through the wc claim. Had another deposition (via Zoom at least!) so that was really no fun. I have no stamina, even for Zoom, had to do it in two sessions. Now they want me to do a vocational eval. That's gonna be fun - not. They are gonna mail me a packet to do when they start the session. Supposed to take up to 4 hours. I can't do ANYTHING for 4 hours. And then they want to talk with me for 2 hours. It is supposed to be from 10:00 on for 6 hours. Yeah. I'll melt/fall asleep. So I'll have to explain, and then just stop I guess.

At least my pain is as well controlled as ever. I am even trying to use my cane at home when I can!
Maybe it is time to write them a registered, formal letter to state that you cannot do anything for that long, and a note from your doctor would probably help you lots!

I think that is the way to go rather than to just go blindly ahead with this.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Reply

Tags
crps, hows, lot, safe/healthy, son

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:40 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.