Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-14-2020, 07:04 AM #1
annabanana123 annabanana123 is offline
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Default How's everyone doing?

How's everyone doing? Staying safe/healthy? I'm good - mostly just bored but thankfully still working from home so that helps a lot. It has been good for my pain in a lot of ways since I'm not constantly rushing around from one activity to the next with my son but in other ways it seems like CRPS is just getting more and more intense (or my meds are working less and less? not sure). Anyways hope everyone's doing well!
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Old 05-14-2020, 01:06 PM #2
caroline2 caroline2 is offline
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Nice of you to ask "how everyone is"...

I'm good overall except for the nasty OA and damage done from hip replacement.

Working with a new supplement from LifeExtension for the above issues. I'll give the 2 a 3 month trial.
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OA onset at 18, now 81. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old 05-19-2020, 07:10 AM #3
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I'm sorry you're dealing with that. I've got horrible OA in my knee from 4 surgeries and the next one I do will be a replacement but since I'm in my 30s they want to hold off as long as possible. It's a mess - celebrex does help some though for what it's worth
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Old 05-19-2020, 01:28 PM #4
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Oh dear all those surgeries. One major hip replacement in my life was TOO MUCH and then a arthro clean out of the knee in 2017 I believe made it worse. Knee is messed up from the hip surgery too. It's so alll connected. I often believe the less we do the better off we are. You are so young, did you do a lot of hard sports to go thru those surgeries? C
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OA onset at 18, now 81. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old Yesterday, 07:50 AM #5
annabanana123 annabanana123 is offline
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Quote:
Originally Posted by caroline2 View Post
Oh dear all those surgeries. One major hip replacement in my life was TOO MUCH and then a arthro clean out of the knee in 2017 I believe made it worse. Knee is messed up from the hip surgery too. It's so alll connected. I often believe the less we do the better off we are. You are so young, did you do a lot of hard sports to go thru those surgeries? C
I played every sport under the sun and was super competitive however what did me in was running marathons oddly enough. I felt and heard a pop in my knee and that was it...
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Old Yesterday, 02:58 PM #6
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I somewhat feel a sadness that this current generation has been pushed into all the aggressive sports and competition that has gone on. Not my parents generation.

My grandson who is only 20 has already dislocated his elbow twice "doing sports"....
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OA onset at 18, now 81. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old Today, 06:43 AM #7
annabanana123 annabanana123 is offline
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I was never pushed into them but found them on my own...and loved it. I wish I could still do it but I can't anymore. I really wanted to try an ultramarathon when I got injured (a 50 mile race). There is nothing quite like the "runner's high" or the rush of endorphins when you kick the winning goal.

Now I have to resort to competitive board games and being competitive at work. Or competing against CRPS...
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