Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 05-15-2020, 07:37 PM #1
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
Default Bad flair up

Can’t deal with this live on border in Canada my RSD is work related US side an Can’t get across the border it is shut down an I need to go to hospital but the hospital is dealing Cov -19 **** and I don’t need that too. my pain has been a 10 for the last 3 days and I’m going’ out of my mind I’m hiding in the back bedroom because I can’t deal with this anyone.
RSD31 is offline   Reply With QuoteReply With Quote

advertisement
Old 05-19-2020, 07:12 AM #2
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

I'm so sorry you're dealing with this! Do you have a pain management doctor you can call? Do you have any meds you can take for it? Or medical marijuana or anything? I hate the bad flair ups...it's like nothing works except massive doses of meds and even that doesn't always help that much. Hope you're feeling better soon.
annabanana123 is offline   Reply With QuoteReply With Quote
Old 05-19-2020, 09:07 PM #3
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
Default

I went to hospital an got a couple of pain shots pain doctor wants to admit to hospital for a couple of days.
RSD31 is offline   Reply With QuoteReply With Quote
Old 05-24-2020, 04:25 AM #4
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by RSD31 View Post
I went to hospital an got a couple of pain shots pain doctor wants to admit to hospital for a couple of days.
I'm glad you got some help. Keep us posted! Hang in there!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
Old 05-26-2020, 07:49 AM #5
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Quote:
Originally Posted by RSD31 View Post
I went to hospital an got a couple of pain shots pain doctor wants to admit to hospital for a couple of days.
How are you doing now? What is your treatment plan going forward? I think we're all always looking for ways to improve our own
annabanana123 is offline   Reply With QuoteReply With Quote
Old 05-31-2020, 12:07 AM #6
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
Default Katamine

They want me too do. The katamine infusion but my wife an daughter are not happy with what they have read about it I would love to talk to someone who has done it the problem I think for me is I’m 42 years this June with this RSD and I think I,m running out of thinks that will help me because I,m having problems with kidneys and other organs because of the RSD and the long term use of Rx’s.
RSD31 is offline   Reply With QuoteReply With Quote
Old 06-01-2020, 07:22 AM #7
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Quote:
Originally Posted by RSD31 View Post
They want me too do. The katamine infusion but my wife an daughter are not happy with what they have read about it I would love to talk to someone who has done it the problem I think for me is I’m 42 years this June with this RSD and I think I,m running out of thinks that will help me because I,m having problems with kidneys and other organs because of the RSD and the long term use of Rx’s.
I'm sorry! What about the ketamine are they unhappy with? I would try it in a heartbeat if my insurance was willing to pay for it. Also which meds messed up all of your organs? My understanding is some are worse than others and I'd like to avoid what I can...praying you get some clarity and can reach the same page as your family on what the best next steps are.
annabanana123 is offline   Reply With QuoteReply With Quote
Old 06-02-2020, 08:34 PM #8
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
Default

40 plus years of taking NSAIDs and pain pills .plus don’t know if we will pay for katamine plus I have to go the st-Paul Minnesota not a good time to be there with Cov and the other crap that going down.
RSD31 is offline   Reply With QuoteReply With Quote
Old 06-03-2020, 09:09 AM #9
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Gotcha! Yeah my insurance refuses to pay for it so it's not an option for me right now. I can't justify spending that much money on something that might temporarily work. It's a horrible time to do that, I agree, but most hospitals are being super careful with how they handle covid versus non-covid patients. I have been to my PM and felt safe while there.
annabanana123 is offline   Reply With QuoteReply With Quote
Reply

Tags
border, can’t, deal, hospital, i’m

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Flair Up or Relapse? lisainvegas Myasthenia Gravis 9 09-26-2012 03:13 PM
Flair? or over reaction? Dejibo Multiple Sclerosis 37 09-14-2009 02:56 PM
How many of you suffer from cervical steno sis, and its lovely flair ups. john jeffery aka JJ Spinal Disorders & Back Pain 1 10-14-2008 02:32 AM
Mad, Tysabri, flair(?) and major vent (sorry) SurvivingMSwithHOPE Multiple Sclerosis 7 02-06-2008 07:04 PM
Surgery causes TOS to flair.... dreambeliever128 Thoracic Outlet Syndrome 10 12-12-2006 09:09 PM


All times are GMT -5. The time now is 09:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.