Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 06-17-2020, 12:07 PM #11
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
10 yr Member
birchlake birchlake is offline
Member
 
Join Date: Jan 2010
Posts: 363
10 yr Member
Default

Quote:
Originally Posted by annabanana123 View Post
Has anyone tried the hyaluronic acid injections in your knee? I'm considering it as a way to hold off on surgery for a bit.
Yes, I have been getting them for about a dozen years. I get them every 6 months as that is what most insurance companies will pay for.

There are many brands of this product. I use EUFLEXXA, a laboratory produced injectable. SYNVISC is another very popular brand of this. The form found in Synvisc is made from gelatinous substances derived from chicken (rooster) combs. I have tried them both and have better results with Euflexxa. It is a series of 3 shots, one a week for 3 weeks. I feel the most relief about 3 weeks after the final injection; takes a while to lubricate the joint and reduce inflammation.

While these injections have been shown to provide relief for mild to moderate knee degeneration, it probably will not provide as much relief to you when you have severe degeneration, which I am approaching.

I also had stem cell and plasma rich platelet procedures about 14 months ago. This gave me approximately a 25% improvement so helped some, but not a lot and these procedures were completely "out of pocket" for payment, insurance not on board for most procedures which are considered regenerative.

Last edited by birchlake; 06-18-2020 at 06:46 AM.
birchlake is offline   Reply With QuoteReply With Quote

advertisement
Old 06-17-2020, 01:23 PM #12
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
caroline2 caroline2 is offline
N/A
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 3,313
8 yr Member
Default

I had them done some yrs ago, both a series of SynVisc and yrs later Eufflexa, can't say they did much...I truly truly believe I've gone thru so much more damage from the hip replacement complications I'm left with and subsequent staph infection in knee where they did a "clean out" and I don't think that helped.

Work with rubbing Coconut oil into the knee(s) and also consider Monolaurin internally. There is a LOT of info on this miracle oil.
caroline2 is offline   Reply With QuoteReply With Quote
Old 06-20-2020, 04:56 AM #13
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by annabanana123 View Post
Has anyone tried the hyaluronic acid injections in your knee? I'm considering it as a way to hold off on surgery for a bit.
I would give it a go (although I am warning you, injections in the knee "can" be painful, it depends on where they stick you). I got a steroid once right below the patella. Man, that hurt!

But don't want to scare you!

I would try anything, if I were you, before resorting to surgery. That should be your last step.

I did have knee-hole (edit: I meant "peep-hole" LOL) surgery on my right knee. And I woke up with a greyish/black leg, toes to hips. This was when I already had CRPS.

This is why they won't touch the left one.

Debris needed to come out due to my initial injury. The right knee was *super* painful because debris had "gone wild" in it. The left is do-able, but still, I have the patella pain.

Good luck, whatever you decide!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008

Last edited by CRPSbe; 06-20-2020 at 09:42 AM.
CRPSbe is offline   Reply With QuoteReply With Quote
Old 06-22-2020, 08:11 AM #14
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 95
5 yr Member
Default

Thanks Marleen! I am no stranger to injections in the knee, I've had well over a dozen at this point. Steroids don't go well and it crystallizes in the joint now. So we have stopped those and I'll never do one again. The worst was draining blood/pus from it after one of my surgeries. But it's never fun - it's just a matter of how much not-fun it is. Compared to surgery though the injections are a walk in the park so I'm praying they work. Still waiting to hear from insurance.
annabanana123 is offline   Reply With QuoteReply With Quote
Reply

Tags
dose, knee, management, pain, replacement


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Knee Replacement with PN atltom Peripheral Neuropathy 8 01-13-2016 10:44 PM
Help-need knee replacement while on Cellcept fox41 Myasthenia Gravis 1 05-14-2014 02:22 AM
DH getting knee replacement tomorrow ewizabeth The Stumble Inn 23 02-20-2012 03:44 PM
Knee replacement surgery accu200 Parkinson's Disease 8 11-04-2010 08:42 AM


All times are GMT -5. The time now is 06:17 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.