Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-04-2020, 03:32 PM #1
annabanana123 annabanana123 is offline
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Default CRPS in mouth?

Has anyone had this spread to (or start in) your mouth/tongue? I am feeling a lot of burning there today and it's miserable. If you have do you have any tips/tricks?

Thanks!!
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Old 11-04-2020, 03:07 PM #2
Lyla Grace Lyla Grace is offline
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I have RSD in my mouth, sinuses, eyes, and ears as well as the rest of my body. My mouth can get incredibly sore. One thing that helps me is taking the supplement L-Lysine (not regular Lysine) but that helps with soft tissue repair. It's cheap and I take about 4 a day when I'm in a flare. Also swishing with warm salt water. I'm sorry you are hurting.

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Old 11-05-2020, 09:59 AM #3
annabanana123 annabanana123 is offline
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Thanks Lyla! I will definitely look into that. Thankfully it's not all day every day so I can eat most of the time - and during that flare up I do a lot of protein shakes and greek yogurt and smoothies. It's no fun but we all learn to cope I guess when there's not another option
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Old 11-05-2020, 10:23 AM #4
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Welcome Lyla Grace.

Kitt
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"Thanks for this!" says:
Lyla Grace (11-14-2020)
Old 11-07-2021, 02:16 PM #5
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Quote:
Originally Posted by annabanana123 View Post
Has anyone had this spread to (or start in) your mouth/tongue? I am feeling a lot of burning there today and it's miserable. If you have do you have any tips/tricks?

Thanks!!
I just found this old post of yours whilst frantically chewing sour gum to deal with my mouth pain. My mouth issues started after a molar extraction three years ago and it hasn’t abated. Thus far no one knows how to help me.
How are you doing?
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