Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-04-2020, 03:32 PM #1
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 86
2 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 86
2 yr Member
Default CRPS in mouth?

Has anyone had this spread to (or start in) your mouth/tongue? I am feeling a lot of burning there today and it's miserable. If you have do you have any tips/tricks?

Thanks!!
annabanana123 is offline   Reply With QuoteReply With Quote

advertisement
Old 11-04-2020, 03:07 PM #2
Lyla Grace Lyla Grace is offline
Newly Joined
 
Join Date: Feb 2020
Posts: 1
Lyla Grace Lyla Grace is offline
Newly Joined
 
Join Date: Feb 2020
Posts: 1
Default

I have RSD in my mouth, sinuses, eyes, and ears as well as the rest of my body. My mouth can get incredibly sore. One thing that helps me is taking the supplement L-Lysine (not regular Lysine) but that helps with soft tissue repair. It's cheap and I take about 4 a day when I'm in a flare. Also swishing with warm salt water. I'm sorry you are hurting.

Sent from my SM-N960U using Tapatalk
Lyla Grace is offline   Reply With QuoteReply With Quote
Old 11-05-2020, 09:59 AM #3
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 86
2 yr Member
annabanana123 annabanana123 is offline
Junior Member
 
Join Date: Aug 2018
Posts: 86
2 yr Member
Default

Thanks Lyla! I will definitely look into that. Thankfully it's not all day every day so I can eat most of the time - and during that flare up I do a lot of protein shakes and greek yogurt and smoothies. It's no fun but we all learn to cope I guess when there's not another option
annabanana123 is offline   Reply With QuoteReply With Quote
Old 11-05-2020, 10:23 AM #4
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,098
10 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,098
My Mood: CRPS in mouth?
10 yr Member
Default

Welcome Lyla Grace.

Kitt
Kitt is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lyla Grace (11-14-2020)
Reply

Tags
burning, feeling, lot, miserable, tips/tricks

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
CRPS in mouth Inspiretoday Reflex Sympathetic Dystrophy (RSD and CRPS) 9 02-05-2016 04:52 PM
RSD in Mouth? msjanice12 Reflex Sympathetic Dystrophy (RSD and CRPS) 39 02-02-2012 09:29 PM


All times are GMT -5. The time now is 05:54 AM.

Powered by vBulletin • Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.