Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-09-2020, 06:00 PM #1
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Went to pain Doctor today and he told me there 80,000 complaints about the SCS units told me not let them put that think in me.
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Old 10-09-2020, 06:15 PM #2
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I would find out the name & brand details of any product in question, then web search that information for the facts..
Its hard to know if a statement like that applies to the newer devices, or the older ones , or the place or person that inserted them...

some devices are reliable & some maybe not be as good..same for drs & providers..

There are pasts posts on SCS but for our search tool you need to use spinal cord stim.. (needs to be more than 3 letters)..

complaints about SCS units - Google Search

For me something invasive like that would depend on my pain levels and if meds /side effects are too bad to continue with those..
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Old 10-09-2020, 08:59 PM #3
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Well this Doctor I seen is known world wide as a expert in RSD care an treatment he told me today donít let anyone pt one in they have stop putting them in 6 months ago an he said there 2 other Doctor in the cities putting them in an they have put a hold on them ontil the out come of FD!
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Old 10-11-2020, 06:13 AM #4
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I agree with Jo*mar in that it largely depends and that you can't just up and make generalized statements.

Personally, I have not chosen an implant, because I did not want to go that route, but that doesn't mean the devices are necessarily all bad. Some people get relief from them, even though others don't.

You have to make the choice for yourself though, and do plenty of research. It is a tough decision, for sure!
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- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 10-11-2020, 08:53 AM #5
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I personally chose not to get one because it wouldn't cover all of my pain and because surgery never ends well for me. That said I don't think making a blanket statement that they're all bad is beneficial because some have fairly good track records and help people a lot.

Who is your doctor that's the specialist? Is it one of the big CRPS docs that's well known or someone else? Every PM can have an opinion but that opinion doesn't necessarily make it a fact, ya know?
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Old 10-12-2020, 08:36 PM #6
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Well I called the FDA and was told today that there where a very large number of complaints about the units and they where looking into and told me that a statement would be coming out sometime about it take as you want Iím just telling yo what I heard donít shoot the messenger.
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Old 10-14-2020, 09:11 AM #7
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Oh I know that's absolutely true, I just also know it helps a lot of people so I think blanket statements in general are bad. I personally opted not to get one but I have heard of them being really beneficial to some.
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Old 10-19-2020, 11:32 PM #8
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Quote:
Originally Posted by annabanana123 View Post
I personally chose not to get one because it wouldn't cover all of my pain and because surgery never ends well for me. That said I don't think making a blanket statement that they're all bad is beneficial because some have fairly good track records and help people a lot.

Who is your doctor that's the specialist? Is it one of the big CRPS docs that's well known or someone else? Every PM can have an opinion but that opinion doesn't necessarily make it a fact, ya know?
His name is Dr Todd Hess he is in the St-Paul Minnesota, I was referred to him by my orthopaedic doctor who works on the NFL teams as shoulder surgeon and he recommended him and called the RSD organization and they knew about him and gave him a very height rating, so does help you.
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