Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-28-2021, 12:09 PM #1
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I'm 76 years old (77 in 4 weeks). I had the first Moderna April 7 with no reaction at all. The second was May 5, and I again had no reaction.
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Old 05-28-2021, 01:23 PM #2
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Just talking to a friend and he's tried so hard to NOT to have his mom and dad get the vaccines, but they did and now he's saying mom is being told she may have ALS. She's also used aspertame all her life and he says that can also cause ALS....

Then yesterday a man called in a health program I listen to and he's been dealing with Macular Degeneration for many years and says his sight is worse since vaccine....he was asking the MD what she thought and she said so so much unknown on these unapproved rushed vaccines....

So....Take your Chances....I will NOT.
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Old 06-06-2021, 08:25 AM #3
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Get this.

3 weeks on the *dot* after my mom's 1st Pfizer shot, she came down with shingles in her eye. The blisters are up her forehead and in the upper waterline (little pit of the eye and other corner). Yeah. That.

She will not be getting that 2nd shot. Doctor said, you have to be rid of this, and then still give it 2 weeks before the 2nd shot, and the system in Belgium is not designed that you can still log in to change that 2nd shot date. So now she has to call into that center, which is terribly busy!

She was bedridden all yesterday, so Saturday In so much pain that I let her have one of my sublingual buprenorphine tablets at the very end of the day. I had to see this the entire day, debating with myself whether or not it would be the right thing to do. But I did. She accepted it. And about half an hour later she was up and out of bed and she could not even lift her head out the pillow before.

Guys, I don't mess around with pain medicine, believe you me! I am *very* protective of my medication, but I could no longer take it. She was in agony.

She had gone to the doctor Friday, but it wasn't our regular GP, but the replacement doctor. And I think he might have underestimated the pain she was in & gonna be in.

I mean Friday she could still drive to the pharmacy to pick up her eye ointment (which is a bust, she can't tolerate it - it burns like the dickens), and the next day: totally bedridden.

She is on the couch today. Like yesterday, when I let her have one of my tablets.

I don't just give these out to people, trust me (oh no I don't), but my mom was a different matter altogether.

So yep...

Talk about a "side-effect".

That's lowered immune system if ever I saw it. It should strengthen right, not lower?
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Work related (car) accident September 21, 1995, consequences:
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- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 06-06-2021, 02:15 PM #4
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Sorry to hear of what mother is going thru, I've heard so many side effects from the vaccines and the latest I've just read is nosebleeds and lumps appearing on the body and underarm. They are not for me. I'm 83 soon and work to keep a strong immune system as that is the real protection for the viruses...all types.
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Old 06-15-2021, 06:06 AM #5
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Quote:
Originally Posted by caroline2 View Post
Sorry to hear of what mother is going thru, I've heard so many side effects from the vaccines and the latest I've just read is nosebleeds and lumps appearing on the body and underarm. They are not for me. I'm 83 soon and work to keep a strong immune system as that is the real protection for the viruses...all types.
Perfectly understandable age 83.

My mom has had this since the beginning of June (thereabouts) and it's going to be 2 weeks soon and it is only like 25% better. 3 doctor's visits later, some anti-viral medication, anti-viral eye gel and some NSAID eye drops because she had a whopper of a conjunctivitis to top it off! It is going to take at least... oh at least 2 more doctor visits.

We'll have to see. And of course, the anti-virals is a "round" of 7 days every time, so she needs to go for a check-up and for re-upping the prescription.

She did get some Tramadol the last time round, because she was taking paracetamol and crawling over the floor (literally) every time she needed to muster up the strength to get up in the mornings.

It's that bad. Every morning she is near tears (and that is super hard to see from a daughter's POV).

At least now she can open the left eye for about 20-25%. And the redness has mostly subsided (it was bright red, inside and outer lid).

Funny though. Shot was in her left arm. She has shingles in the left eye.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-18-2021, 04:13 AM #6
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I have been fully vaccinated, no ill effects. Just wanted to come on here and mention that. My CRPS did not flare up, nothing of the sort. Not even sick, nothing but a tiny bit of a sore spot on the arm, which... I could deal with. I had "offered" my "good" arm, meaning the less bad one.

My mom came down with shingles of the eye 3 weeks after Pfizer shot N°1. On the dot 3 weeks later. Left arm injected. Left eye affected. It is strange. Anyway, she has had that since June 1, and it's still going on and being treated right now, so for sure until September 1, if not October 1 because she has doctor's appointments mid to late September for this still. <sigh> Yeah, rollercoaster. I mean, who would think that? Her 2nd shot is needing to be postponed until 2 weeks after it clears up. They keep calling and each time we have to tell them, "severe case, still not healed, please keep her listed".

My dad had refused his first shots, no wonder, it was AstraZeneca, which was approved in the EU, but not in the US. He did *not* want that, with a vengeance. I would have refused that also. Both me & mom got Pfizer, BTW.

I just got given the all clear to re-activate him yesterday, so he could get the invites again. Hoping this time it will be Pfizer or Moderna, maybe, maybe even J&J, because they no longer do AZ due to concerns (finally darn it).

They will never make it compulsory in this country. Fear of lawsuits. There are people who have died from the vaccines, but apparently they are quantities you can just "ignore" because oh "C" is sooo much worse. Kind of twisted logic, in my book. Let's just keep it real. Those are deaths just as well that perhaps could have been avoided with the right vaccine, or a different one.

Anyway. I am certainly not anti-vaccine, but I was still cautious about the whole thing and definitely weighed the pros & contras.
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-18-2021, 05:18 PM #7
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Hi Marleen,
I don't have RSD but have been following the thread and your recent messages about vaccines. I'm glad yours went well but am so sorry to hear about your mother's ongoing problems. That must be really terrible for her to deal with, and ouch, in the eye for so long. Just awful.

I wrote a couple of messages elsewhere recently. I was faced with the usual blind hyperbole and lack of empathy and I ended up deleting them. Despite what some people (including governments) are telling us, one size does not fit all and one vaccine is not suitable for everyone.

I had no choice in my area of Australia unfortunately but to get the AstraZeneca and it made me very ill. I'm on Immunotherapy (Pembrolizumab) for metastatic melanoma. It is an immune checkpoint inhibitor. It is not like Chemotherapy where the immune system can be suppressed. Immune checkpoints are part of the natural immune response that keeps your immune system from being too aggressive. My body is in a kind of "overdrive" all the time so having this particular vaccine seems to have tipped me over into more dangerous territory.

I didn't want to get the AstraZeneca but it was all that was available in my area. I'm still recovering and have had to have my usual treatment postponed until I am well again. All very troubling.

I don't know what will happen when I'm due for the 2nd one. I can't go through this again. I wish I'd been able to have a choice. After all the research that I did, I asked to have an mRNA vaccine rather than the one that I got but because I spend so much of my time back and forth to pathology and imaging and oncology wards etc., I had to take what was available unfortunately.

I wish you well and hope that your mother gets better really fast.

Last edited by Lara; 08-18-2021 at 05:50 PM.
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