Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-04-2021, 03:33 AM #1
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Has anyone taking the COVID vaccine yet? Did you have any side effects? I had a first dose about a week ago with no significant side effects except for sore arm. I expect to have the second dose two weeks from now. I am feeling a little bit apprehensive. Please share your experience and thanks.
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Old 02-04-2021, 11:31 PM #2
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OP: Sorry you have not gotten a reply, I would have thought someone here had gotten one.
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Old 02-08-2021, 08:49 AM #3
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Hi OP, sorry I don't come on here as much as I used to since it's not too active. I have received the first dose of the Pfizer vaccine. I had some pretty intense body aches for about 36 hours with that. I get my second later this week and can report back after that unless you're getting yours before I do.

I work in healthcare and I've had colleagues get anything from zero side effects to just a sore arm to full on flu-like symptoms with high temps for 2-3 days. Most fell in the middle with some aches, soreness, maybe a headache or lowgrade temp for a day.

The important thing to remember is that even if you feel awful it's not a bad thing, it means your body is doing what it should and building antibodies to fight covid.
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Old 02-10-2021, 07:13 PM #4
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No. I have yet gotten the 2nd shot. . It is expected to be next week. I will report my experience after I get it. I am surprised there are not much responses.
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Old 02-11-2021, 06:09 AM #5
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In Belgium about 3% I think has had their first dose. Ursula Von der Leyen just admitted failure in getting vaccines for the EU, depending too much on the companies being able to fulfill the request. So we are basically behind, big time. I think we'll still be vaccinating people in December this year!

If I can get it, I will, no doubt. I'm not anti-vaccination at all, on all levels.

Due to Covid, I got my first flu shot this past year. My parents (who are mid-70s) got it too. At least we won't have to worry about that, making the distinction should not be too hard, should we "get something". I sure hope not! Oh, my parents had no issues. My arm was quite sore. And that's my "good" arm.

I sometimes check this board, but not too often. Sorry guys; will get back to you once I get vaccinated. I think I'm risk group, but not sure. They are talking about March, but I fear that is far faaaar too optimistic. That's a couple weeks from now, and they still haven't vaccinated first line workers, who are rightfully angry!

It is a total mess here, I can tell you that much!

And we did buy the vaccines, but the companies won't deliver, are backed up. I find it odd that the US apparently *does* have those deliveries, but we (EU) don't!!!
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Old 02-11-2021, 09:32 AM #6
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Ok, so I got my second shot this morning. So far, flushed face and sore arm and got super nauseated 10 mins after the shot but I have a very weak stomach. Nothing major.

Both of my parents (early 70s) got their second on Monday. Mom had a sore arm, dad had nothing until Weds when he felt flu-like but not enough to stay home from the golf course.

My coworkers who have had it have ranged from absolutely no side effects to in bed with 103-104 degree fevers for 2-3 days. Oddly enough the younger you are the worse you seem to fare with this. There are theories behind it and we're researching why but the current theory is stronger immune system = stronger immune responses.

I'll report back in a few days with any additional side effects
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Old 04-13-2021, 08:43 AM #7
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Quote:
Originally Posted by numb View Post
Has anyone taking the COVID vaccine yet? Did you have any side effects? I had a first dose about a week ago with no significant side effects except for sore arm. I expect to have the second dose two weeks from now. I am feeling a little bit apprehensive. Please share your experience and thanks.
I took the first dose of the Moderna vaccine end of February. Within a week I started having numb and tingling arms, legs, hands and feet. Went to the ER because the symptoms came on so fast. Went to my GP and neurologist who prescribed gabapentin. I’m now 6 weeks out since the vaccine and I don’t see any improvements.
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Old 04-16-2021, 07:18 AM #8
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Quote:
Originally Posted by Prince227 View Post
I took the first dose of the Moderna vaccine end of February. Within a week I started having numb and tingling arms, legs, hands and feet. Went to the ER because the symptoms came on so fast. Went to my GP and neurologist who prescribed gabapentin. I’m now 6 weeks out since the vaccine and I don’t see any improvements.
Sounds awful. Hang in there.

Is that even listed in the side-effects? If not, maybe get this listed? I'm sure there is a place you can get the side-effects, especially the more unusual ones, listed.

In Belgium they collect them, and if they are serious enough they will get put through to the EU's list of side-effects. I don't have the sites on hand, but it's out there.
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- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 04-16-2021, 11:38 AM #9
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Yes, I reported this both to the VAERS system and called Moderna themselves to report it. Moderna said that their medical team would call me back and of course they never did.

Sadly, stories like mine are being hushed up by the mainstream media.
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Old 04-16-2021, 12:50 PM #10
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Hello Prince227

Sorry to hear you may have had an adverse reaction to the COVID Moderna vaccine.
If you feel this was definitely a vax reaction, you should persist in contacting Moderna again and al the CDC/FDA as it is my understanding that the latter do take adverse reports very seriously - as can be noted from the current pause with the J&J vax after only 6 in 6.8MILLION reports of cerebral clots!

Here is the CDC link related to adverse effects :
What to Do if You Have an Allergic Reaction After Getting A COVID-19 Vaccine | CDC

I do think there needs to be caution with making a rather broad statement about"hushing up" adverse reactions by the "mainstream media" as this is unsubstantiated - Just look at their coverage on this J&J situation!
Did you report your reaction to a media source? If not, can they therefore be accused of "hushing it up"?

From what I see in your post you reported to Moderna and on the VAERS system - and therefore they should have it documented.
Again, my suggestion would be that you report this directly to CDC/FDA (Call 800-CDC-INFO (800-232-4636) and ask for the Clinician On-Call Center)
and contact Moderna again to remind them no-one from their physician team has contacted you yet.
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