[screwballpookie]

Hi all,
It has been a crazy week again. I had my stimulator turned down to .90 and during the week again I started going into muscle spasms. I am back on cymbalta, trazedone and skelaxin and the muscle spasms seem to kick in again. While running my stimulator on .90 I was only getting about 30% pain coverage and then the spasms kicked back in. What more can I do? They are causing me to be very tired and in a lot of pain. While leaving the stimulator off I have tons of pain and it makes me so tired and have no energy. When I tried to sleep at night I don't get very much sleep because of the pain. Will it ever end? I suppose not it may only get worse. Sometimes it just sucks. Hope this finds you all doing well. Take care and talk to ya all soon.

Tracy

[Desi]

Hi Tracy! This does NOT sound very good at all! Is this the trial stimulator?? get in to see your doctor Pronto!! Love ya! Desi

[JOAN_M]

sounds like the leads are not quite right there .... joan

[screwballpookie]

Hey all,
No this is not a trial stimulator it is a permanent stimulator. I have had it in since December 2006. I did see the doctor a couple of weeks ago and he put me on skelaxin to help with the spasms and put me back on cymbalta, but it doesn't seem to be helping. Should I go back and see the doctor again? I am just so tired of being in so much pain and dealing with the spasms . Is there an end to any of this? Probably not. I just try to deal with it the best I can. Sometimes it is so difficult. Thanks to all of you for being so supportive in everything. My prayers with you all.

Tracy

[JOAN_M]

even if it is permanent, the leads can move. i have a friend i e-mail with all the time and she and had that happen. call the doctor ... that is what they get paid for. joan

[Auberon]

Hi Tracy,
sorry to hear the SCS is giving you that level of relief. I have one that has moved - it is an 8 octad lead addressing lower extremity CRPS that is extreme to say the least. Had a huge issue with the pain sp. to get new films of it - turned out it had actually moved enough to be touching the wrong nerve root. It was like I had urinated on an electric fence when activated on any program(a somewhat mild but crass description).

They did not review!
I do hope this hasn't happened to you.....but it might be worth a look - an X-ray is not too costly & could yield a great deal of diagnostic value & peace of mind. Even if the lead has been in place for the time you mentioned, I recently found some meta-analyses based on a number of practitioners implanting this technology from several different countries & the consensus was that a high percentage of leads do move.

I'll cross all appendages that can be crossed in the hope you get more relief very soon.

feel better Auberon

[screwballpookie]

I want to thank you all for caring so much and for giving me suggestions. They all help. I do have one question though. What would make the leads move? I can't recall anything that I have done that may have caused them to move. The way I understood it is that when the scar tissue heals around the leads it is less likely to move. Is this true or is this false information? Again thank you to you all.

Tracy