Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-27-2021, 12:34 PM #1
HitByABoat HitByABoat is offline
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Default CRPS or scar tissue?

I don't have an official diagnosis for RSD/CRPS, but two of my doctors suggested that it might be a possibility for me. I don't have excruciating pain. I do have scar tissue that is uncomfortable at all times - and the site of more extreme sensations when I'm mentally/emotionally stressed. It's in a soft tissue injury on my leg that occurred at the time of a TBI, near drowning, and blood loss. More recently I've had a very slight burning sensation in my skin on my uninjured leg (mirror image). I also have uncomfortable scar tissue on my face, but it doesn't bother me as much as the area on my injured leg.

None of this seemed worth complaining about, compared to everything else that I went through and survived. Now I'm just falling apart emotionally so much that I can't think about anything else. There's definitely a component of PTSD with me, despite the fact that I have zero memory of the traumatic event, and therefor no flashbacks or nightmares. It's been 15 years since my accident, and I have major issues with hypersensitivity, uncontrollable crying, poor concentration, poor memory, and probably other things I can't remember right now. I'm waiting to see a Neuropsychologist who can help me untangle my issues, but in the meantime I am wondering:

What would be the main distinctions between uncomfortable scar tissue and complex regional pain syndrome?
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Old 09-27-2021, 12:44 PM #2
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Has any Dr checked your hormone levels?
There have been some posts about it on the PCS/TBI forum, head injury can sometimes disrupt hormones causing hypersensitivity, uncontrollable crying, poor concentration, poor memory...

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Old 09-27-2021, 02:43 PM #3
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No I have not had my hormones tested. I've come across info on the relationship between TBI and hormone disruption on other platforms... Dr. Mark Gordon and Amen Clinics come to mind. I mentioned it to my doctor, along with questions about SPECT scans, and he wasn't familiar with the research. So that didn't get me very far. Of course those celebrity doctors are all promoting tests and products that aren't covered by insurance... I would love to get some lab work beyond the regular blood panels, but I don't know where to go to get it if I don't have a doctor who is skilled at reading the results.
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