NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Blocks?? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/25968-blocks.html)

jacquelina,

I just read about your mouth and face pain, it sounds awful. I probably shouldn't be posting this until I can remember just exactly what it is I'm trying to tell you, but I do recall reading about compounding pharmacies that are able to make mouth lozenges called "troches" that are specifically for the mouth pain you are experiencing. I'm sorry I can't remember the exact name, it has been a while and unfortunately I don't retain info all that well:( If I come across it I will definitely let you know. sorry you are suffering, jenny:hug:

If you could remeber that would be wonderful...

If you could remember i would apperciate it so much! This facial pain is horrible... i dont even want to breath because it hurts so much... UGH :( :( :( .... I just wish i could get rid of the mouth pain the rest i could deal with!

Thanks again to everyone!

Pain free hugs!! :hug: :hug: :hug:

Yes, it feels hard to breathe, because if you do, it will run across your face... have you tried tying a light weight scarf around your mouth (I know the contact with skin will hurt, but maybe it will be easier on you than your breath running across your face?).

HTH, sweetie! :hug:

Mouth Rinse: elixir dexamethasone 0.5 mg/5ml
1 tsp 3 times daily; hold 1 minute, then spit out

THIS IS ONE OF THEM.
THERE AR ALSO SWISH AND SWOLLOW MEDS. NOT SURE WHAT IS PERSCRIPTION AND WHAT IS OVER THE COUNTER BUT YOU CAN CALL YOUR PHARMACY.
JOAN

i have a block every 2 weeks (switching off between sgb and sympathetic) i have never had a spread problem. i have learned there is 1 very important factor when having them done...make sure the doc knowns what they are doing. i had a nurse practitioner once do a nerve block and had an awful result...my lower body ended up completely involved. the reality seems to be that in any person even with the best doc the possibility for a problem exists. as for the results following a single block, if you experience even limited positive results the procedure probably needs to be repeated. as someone else said when i first started having them done and in general my doc does 1 then another 7 days later if the improvement lasts longer than she maintains the 7 day cycle for about a month just to get a base line. if however the second in the series is less effective she tries to get patients in in 5-6 days the following time and sees if that works better. also to be considered is the injection that is being done. the ladocaine wears of more quickly...there is a blend injection (sorry dont know the name but i can find out if you would like) that works better...at least for me.
lauren

"Troches are a dose form that can be best likened to a lozenge or pastille. It is a small square shape that dissolves in the mouth. The finished troches are dispensed in plastic calibrated molds that contain an accurate and precise dosage unit. Historically, they have been utilized as mouth and throat pain relievers. They are making a return to be used for natural hormone replacement therapy (NHR), anesthetics, antibiotics, and other combinations of medicines. To list them all would be exhausting!"

Wow! Thanks for posting about these, I had never heard of them. I tried to find out info about brands here in the U.S., but to no avail. I see ones for hormone replacement and one for candidiasis of the mouth, but none for pain. I hope someone else can be of more help.

Hi Jaquelina,

It sounds as if you're describing anesthesia dolorosa, which can occur following SGBs, tooth extractions, surgeries involving trigeminal neuralgia, etc.

I hope I'm wrong. Have you discussed this with your doc?

BTW, in another thread I reported that clonidine had no known mechanism of action against neuropathic pain and no evidence that it is efficacious, but in briefly researching AD. I found one reference that reported a pilot study ...on 17 patients with oral neuropathic (pain due to nerve damage) reported that clonidine may be effective in the management of some patients with oral neurlgia-like pain. If this is AD, it may be that clonidine could help...Vic

jacquelina

I really need to learn how to take a link from one web site and put it on another. I looked up compounding pharmacies and troches for mouth pain and this is what I found:

clonazepam 0.25-I know this is usually used for anxiety but they say it works for burning mouth pain.
misprosotol troche-
capsaicin troche
nsaid troches
pilocarpine suckers for burning pain and
carbamazepine, cyclobenzaprine and ketoprofen toothpaste pump

I hope this helps you and if you can't locate any of the compounding pharmacies by googling them let me know and I will try to write down their phone numbers and addresses for you, hope you are feeling better soon,
jenny

sorry, I forgot one:

fentanyl citrate troche or lollipop......jenny