Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-25-2007, 03:35 PM #71
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I decided to stop posting because I knew one wrong word would get me "suspended"; even saying I thought I had made a reasonable request evoked a lecture on what is reasonable.

Still, at the risk of punishment, I have to point out that I have asked to agree to disagree: Having been stalked through four threads and been deliberately misquoted many, many times, I just wanted to be able to talk about my research.

The tactic changed to asking the same questions again and again, and has now changed to the accusation: He has made a statement in his last post about HBOT which is wrong which has the potential to instil fear into someone who was about to undergo this treatment---

Before Tayla made this accusation I had already bumped the Vascular Issues thread back onto page 1 so everyone could read post # 23 and see exactly why I felt 2.0 ATA of HBO could adversely affect RSD patients. I'm sure she had her reasons for making that accusation on this thread rather than the one that explained why I recommend a lower ATA. I'm willing to allow others to speculate on what those reasons are.

I did not ask anyone to post in my defense, nor am I orchestrating responses by others. They apparently feel something is amiss and it has gone far beyond simple disagreement. So do I.

Now, I will drop back into lurker (or perhaps "suspended") mode...Vic
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Old 09-25-2007, 03:52 PM #72
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Again it is all the same research Vicc you have your opinion on RSD/CRPS which is based on others research you have read, we all agree the research we read are old ,and some just nutty, I saw one the other day saying headachs cause RSD! whats up with that? so if someone comes from a family who is known to have a history of migrains than you will have a good chance to get RSD! come on just like everything it all depends on who is paying for the research.
I believe lets say the Ins. Companies who have to pay out for workers comp or other stuff get research done to get answers like it is all in our head, or having PT in a hospital 24-7 will get rid of it the theory "no pain no gain" sorta thing so we have to understand where did that report you read came from? who paid for it, is it tainted by who is paying for it.
Also Vicc you say that you are doing research I have no problem with that, but it is someone elses research you are using and they should get credit for it, but you say over and over these docs are wrong and you attack them. I have a problem there and for you to argue this here is wrong we are just injured people looking for help and you are just making your own opinions without proof! (proof being it is someone elses work,it is not yours did you see actual patients? or run a study?) if you feel your point is right I feel you should present it to the medical field than. Not here in a forum of injuried people who are here to get support from each other. I think you bring up interesting points of view Vicc and I also feel that if some one disagrees with you that you act as though it is a personal attack wich is wrong.
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Old 09-25-2007, 04:12 PM #73
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I think we will keep this thread temporarily locked for now as it seems to be going in a direction that I do not feel is supportive or informative to the members of this forum who are truly weary of this back and forth!


and no....no one is being or has been suspended on this issue.....

...............we have just patiently kept asking over and over that people please keep to the TOPIC and please not become personally negative to one another....which includes editing in things that are personal toward someone else a day after initially making a post!

I would also like to draw everyone's attention to something that appears at the bottom of every page of Neurotalk:

Quote:
The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
We respect you all for having your views, opinions and experiences and want all to know they can post here without needing to feel concern that they will immediately become the source of interrogation nor do we want others to feel so intimidated that they are too concerned to ask valid questions.

this is a forum for *all* the members here.

thanks
Cheri
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