I posted this on the pn but thought I would get your opinion.After a hundred times back and forth I think I have some plan. I'm not sure like I said if the weather has an impact but after seeing progress I have been in the worst pain this week.I thought at first it was only when its cold and know my foot goes numb and the ache but now I wonder if the rain/humid makes it horrible too and swell and the pain is severe. It may have no conection at all since my symptoms are so up and down. I do see a trend though. We have non stop horrible rain/cold and now rain/so hot and after before having progress this whole week has been hell. I'm going to try ca for 1month to see. I'm so scared of getting worse and being out there but then I can come home asap or if need treatrment my mom will come there. Now I made an apt at pain management at UCLA hospital and have another apt at the reumo there too. No doc suggested the reumo but suggestions from good friends here and my weird symptoms I thought I should.I need some help with pain and want another opinion after the Celevland pain clinic who wanted the catheter. My meds are not helping and would like to try new or some kind of shot. I have only had 2 in the start but was in my leg at the start.So my next ? I want to try to leave soon cause my anxiety is horrible and go back and forth plus if the weather is effecting I want to get away from this non stop weather rain/humid. I do have an apt at u of m pain clinic do I go to hear what they say and then go to ucla and hear what they have to say. Or do I just go to ucla and then if it doesn't work there after the month do the u of m so I'm consistent? I fear going to U of M hospital and if try something then going away to ca or it making me confused more if I should go. I really don't want to go away but really do feel the weather has such bad effects on my pain. Even before the pn whether it be the start of it or not I ached and my foot froze. I am so mixed but I do feel the weather makes a huge impact but could be wrong. I just want relief.I don't want to leave my mom but need to think of the most comfort of pain. I want the best care in treatment though so where I can get that I want it.The issue with that is who knows. Like the Cleveland pain doc was suppose to be the best of the best and did nothing well he wanted to do the catheter but also said if I did the activity like I'm doing I would be so much better and I'm so not. I'm so scared of shots and pumps not for the pain of it or the procedure but the bad side effects or making it worse but need to do something.I'm still doing more each day and taking my walks but the pain has been insane. I'm able to move and have friends there to help not many but some and my old treatment team is there too for my other issues that are better but still need support. Does anyone know any good doc at ca or how ucla pain program is? I know some too know of my issues but any thought of what to ask for? I know someone suggested a patch since meds are not helping. I'm going to ask more about blocks but maybe in the spine unless there is some presision in the ankle area. Very fearful.I just can't go back to the way it was in the winter of in bed.Thanks for any thoughts. I'm so fearful of making a mistake with the move which right now is just a vaction for a month which is not when you in horrid pain and doing the right treatment for my pain and to not make it worse. I know both places u of m and ucla are suppose to be good well I think. Or is this whole idea bad? Just want the most comfort but need to stay strong mentally I promised my mom and for myself anyway. She will be there though like I said with issues or to visit. I feel bad to leaving her after all she has done like I'm mean but she knows she is my world.Ok thank you

The hardest part of RSD is making concessions, you need to follow what you believe will be in the best interest of making you healthier. I know how tough it is to move away from those you love. Your core and strength feel ripped away. But, they will always be there, miles don't erase love and if you improve - health-wise, you will enjoy life more!

The only place I felt healthier and less pain was in the Bahamas, it was either the climate or the alcohol (LOL). Warmth seems to help most of us and I know it helps me.

Best of luck in reducing the pain. Love is rooted for a life time in heartstrings of family.

I know that for me winter is usually the worst time of the year for me as far as pain goes. But I do use an electric blanket to compensate for some of the cold and lots of fleece blankets.

Although this summer we had a few extremely hot and humid days and those days seemed just as bad as the winter (weird).

I always considered moving to a warmer area but all of my immediate family is up here in New England soo I can't part with them. But I do know that when I visit florida to see my grandparents, I usually feel A LOT better.


Heather