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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-19-2007, 06:33 PM | #1 | |||
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This incredibly important article appears on the RSDSA Medical Articles Archive page, listed alphabetically by author - that's de Mos - under the heading "Research" at http://www.rsds.org/2/library/articl...ive/index.html
"The incidence of complex regional pain syndrome: A population-based study," M. de Mos, et al, Pain, May 2007, Vol. 129, Issue 1-2, pp. 12-20. Here's the abstract: The complex regional pain syndrome (CRPS) is a painful disorder that can occur in an extremity after any type of injury, or even spontaneously. Data on the incidence of CRPS are scarce and mostly hospital based. Therefore the size of the problem and its burden on health care and society are unknown. The objective of the present study was to estimate the incidence of CRPS in the general population. A retrospective cohort study was conducted during 1996–2005 in the Integrated Primary Care Information (IPCI) project, a general practice research database with electronic patient record data from 600,000 patients throughout the Netherlands.I had seen the abstract when it popped up a month ago on PubMed, but a graduate student friend was unable to get it off of his university computer system. The implications of the article are staggering, particularly where the insurance industry has been hiding behind a stricker list of "objective findings" in establishing the incidence of RSD in a given population. Significantly, the lastest study appears to have utilzed "reconfirmed diagnoses" as patients initial symtoms became more objectifiable over time. On a personal note, the prior study done in 2002 in Olmsted Co., Minnesota, was by one of the doctors at the Mayo Clinic, who saw me in the Spring of 2002, roughly 9 months or so after I first developed pain, and declared that I didn't have RSD because of what was then a lack of objective findings. Her letter screwed me up for a long time in terms of getting disability coverage, even though I had already had a successful response to sympathetic nerve blocks. (Score one point for the insurance industry.) Hopefully, the de Mos article, appearing as it does in Pain - a major journal - will go a long way to redress the damage done by the earlier work. Mike p.s. Please note that Frank Huygen, who is a joint author of the new study, has also produced a prodigious amount of work linking RSD/CRPS to immunologigal issues, specifically, pro-inflamatory cytokines. For one article that's been the subject of recent discussion on this page, please see "Increased endothelin-1 and diminished nitric oxide levels in blister fluids of patients with intermediate cold type complex regional pain syndrome type 1 J George Groeneweg," Frank JPM Huygen, Claudia Heijmans-Antonissen,Sjoerd Niehof and Freek J Zijlstra, BMC Musculoskeletal Disorders 2006, 7:91 doi:10.1186/1471-2474-7-91 and also available free of charge online online at http://www.biomedcentral.com/1471-2474/7/91 Last edited by fmichael; 08-20-2007 at 05:56 PM. |
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08-20-2007, 05:01 PM | #2 | |||
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Bumping for post-script.
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08-21-2007, 09:40 PM | #3 | ||
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Thanks for posting this timely article. The more data gathers and awareness is promoted the less likely sufferers will have to run the gauntlet before diagnosis and relevent, timely treatment.
jeisea http://www.crps-rsd-a-better-life.blogspot.com |
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"Thanks for this!" says: | loretta (10-11-2009) |
10-11-2009, 12:18 AM | #4 | |||
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Bumping this up to be read again. thanks Mike.
S |
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