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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   when did you get your initial rsd/crps dx (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/26282-initial-rsd-crps-dx.html)

frogga 08-20-2007 01:41 PM

Injured right wrist in a fall Jan 2002
Diagnosed Jan 2002 a week later by PCP (when I was 16)
Originally ER thought i'd broken my wrist. Went to see PCP a week later because of the pain and swelling and blackness and she already had a patient with RSD so recognised it straight away. Diagnosis confirmed by orthopaedics, rheumatologists, neurologists and the pain team.
Still not comfortable with my medical team as they are bloody useless.

Good idea for a thread

Frogga

MarkB 08-20-2007 08:23 PM

1) 1996, age 35

2) Crush injury/brachial plexus stretch/tear

3) Discussed w/in 6 months

JOAN_M 08-20-2007 08:50 PM

GOT A GOOD LAUGH ABOUT THE TEAM BEING BLOODY USELESS!!!! HA! THANKS ... JOAN
Quote:

Originally Posted by frogga (Post 139024)
Injured right wrist in a fall Jan 2002
Diagnosed Jan 2002 a week later by PCP (when I was 16)
Originally ER thought i'd broken my wrist. Went to see PCP a week later because of the pain and swelling and blackness and she already had a patient with RSD so recognised it straight away. Diagnosis confirmed by orthopaedics, rheumatologists, neurologists and the pain team.
Still not comfortable with my medical team as they are bloody useless.

Good idea for a thread

Frogga


Desi 08-21-2007 12:03 AM

Had to have carpal tunnal surgery in Jan. (the 9th. of this year;2007)
Dx April 07- Ortho caught it.(Surgeon who did the carpal tunnal surgery)- went to 5 differnt dr.'s 2 specialists.. all confirmed it being RSD Blahhhhhhhhh..

Caladium 08-21-2007 06:39 AM

???
 
Quote:

Originally Posted by Imahotep (Post 138968)
I knew within a couple hours of the doctor suggesting it might be RSD that it was, indeed, RSD. I checked it out online and found the "alcohol on the affected area" test which was highly positive.

What is the alcohol on the affected area test?? I have not heard of this.

thnx,
Cala

CZZ74 08-21-2007 07:42 AM

11/2 to be diagnosised
 
DX given 2004 I was 51
Accident occured 2003
DX'd by orthopedic after seeing 6-8 other varying types of Doctors.
physical therapist sent me to the doctor who diagnosised me as she felt i should not be in pt. the physical therapist had experience with RSD. I had never heard of it.

Imahotep 08-21-2007 05:19 PM

Quote:

Originally Posted by Caladium (Post 139298)
What is the alcohol on the affected area test?? I have not heard of this.

thnx,
Cala

You can't really diagnose anything yourself but I found an old test that was sometimes used to check for RSD online. Obviously I don't know if this would be positive for other conditions and doubt it always works for RSD.

You just put a little isopropyl alcohol on the hand or whatever and see what happens. When I do it I get a rapid increase in pain. Even water evaporating from my hand will cause pain so I have to dry it immediately. I get a little pain just thinking of putting alcohol on it.

septmystic 08-22-2007 06:23 PM

1. Diagnosed in 2004 at age 34
2. 1998 - Car accident head on (lady talking on cell phone driving on wrong side of highway??? go figure), hit left wrist on dash and smashed side of head into side of window, 2nd accident 8 months later - hit from behind - 4 herniated discs lumbar spine and 2 herniated cervical spine. Made condition worse, starting in left hand, arm and left side of face.
3. Suggested RSD by 6th doctor in 2001 by neurologist, final diagnosis 3 years later by 2 doctors at rehabilitation\pain management doctors, many doctors and many tests. Now condition is both arms, hands and starting left foot. Face condition has disappeared.

Like most people, unhappy with my doctors but have been to all in 60 mile radius and a couple in another state.

Good questions.

Barb2406 08-23-2007 05:59 AM

1. Diagnosed in August 1999 age 52.


2. Injury occured April 1999. Fx 2 bones in right foot while making a visit to a hospice patient.


3. Dianosed by Orthopedic surgeon.


Great thread,

Barb2406

jeisea 08-23-2007 06:39 AM

When & why I developed CRPS/RSD.
 
I sustained a colles compound wrist fracture in 1998. Up to 37% of wrist fracture patients develop CRPS. In 200 Dr P Zollinger discovered that taking vitamin C immediately following trauma nad for 50 days or till pain ceases can prevent development of CRPS. I wish I had known. Now Professor Scott Reuben in the USA has developed protocols to help prevent CRPS post surgery. They also have protocols for dental work. These protocols also prevent further complication for CRPS sufferers who undergo surgery.

jeisea
http://www.crps-rsd-a-better-life.blogspot.com


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