NeuroTalk Support Groups - when did you get your initial rsd/crps dx

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - when did you get your initial rsd/crps dx (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/26282-initial-rsd-crps-dx.html)

1) what year was everyone given a dx (age of patient): November 2006, age 16

2) what was the original injury or instance that started the cycle: original injury in October 2005, slamming my thumb in van door

3) how long after you went to the doctor to ask about the symptoms did you actual get a dx, and by whom (pcp, pain doc, ortho, other): two months, dx by an orthopedic surgeon

My story is strange as in I didn't go see someone sooner... it was really really mild at first, then I got a chiropractic adjustment and it sent the pain through the roof, and I have had it really really bad since!

HTH! Welcome, btw, Lauren! :hug: :hug:

1) what year was everyone given a dx (age of patient): Winter, 1996, 13 years old.

2) what was the original injury or instance that started the cycle: Mild ankle injury (sprain or strain) in October, 1994 (12 years old)

3) how long after you went to the doctor to ask about the symptoms did you actual get a dx, and by whom (pcp, pain doc, ortho, other): Over a year, no treatment given for several more years...it was a nice big disaster.

1. July 2007 and September 2007

2. First injury Sprained Ankle. Second injury Fall and Knock getting out of bath

3. 4 months after injury for the first injury, and about 3 weeks after second injury.

4. Diagnosed both times by Pain Consultant / Specialist

1. 2002,33 yrs. old

2.severe twist to the hand

3.It took 3 yrs.for the doctors to diagnose it

1) what year was everyone given a dx (age of patient)... Hurt in 2000 at age 13.... Official DX in 2002 at age 15
2) what was the original injury or instance that started the cycle--- medial synovial plica in my knee that became swollen due to an injury running track then surgery caused the symptoms to worsen...

3) how long after you went to the doctor to ask about the symptoms did you actual get a dx, and by whom (pcp, pain doc, ortho, other)--- approx 2 years... DXed by a physiatrist (doctor of osteopathic medicine)

Quote:

Originally Posted by Imahotep (Post 139504)

You can't really diagnose anything yourself but I found an old test that was sometimes used to check for RSD online. Obviously I don't know if this would be positive for other conditions and doubt it always works for RSD.

You just put a little isopropyl alcohol on the hand or whatever and see what happens. When I do it I get a rapid increase in pain. Even water evaporating from my hand will cause pain so I have to dry it immediately. I get a little pain just thinking of putting alcohol on it.

Hi The reason it hurts is because isopropyl alcohol cools down the body!! remember yrs. ago when baby had a high fever, this alcohol was used to give babies a alcohol sponge bath? it cools the body down. Just like ice, we can't use this on our RSD areas because it just makes this worse, as does the "Isopropyl alcohol treatment"!! I have NEVER heard of this in my life??:confused: take care. Love, Desi

I had a hip replacement done on feb.15, 1999. Woke up with right foot drop I was told my siatic nerve had been damaged during the operation due to so much bone being eaten away by arthritis. I kept seeing the Dr. and nothing was helping the pain. After 3 mo. he sent me to the pain clinic and 2 weeks later I was told that I have RSD Type 2.

Sue K.

Our Story by Upsidedown Patty

My husband had ingrown toe nails removed in 2002. He knew right away something was very wrong. He has not had a pain free day since. It has traveled up both legs to right above his knees and last year showed up in his hands and is trying to continue into his arms. He was 47 years old. The doctor that did the toe nail removal did not recognize the symptoms at the follow up appointment one week after surgery. Nor did he suspect anything after 2 phone calls over the next 2 weeks complaining of the classic systoms of RSD. I diagnosed it myself from researching on line before going to a neurologist. He asked whom had diagnosed RSD and we said i did and he said "it isn't RSD it is PN". His ego wouldn't allow me to be correct. We did go to another neurologist at an University Hospital who concerred with my diagnosis. However no treatment received for 16 months after initial toe nail removal. This has been a very long nasty nightmare ever since.

1) when/ 2005 (42)

2) how/ a car tire actualy ran across the outside of my upper foot and over my ankle bone and stopped on the very back part of my heel, this was as I attempted to exit the low back seat of a car, the driver noticed and fumbled around (for like ever!) before she finaly found reverse then drove back over it again. :eek:

3)
* I started complaining to docs about odd sensations and pain pretty early after injury but my rt foot was black for along time, very agressive physio 2-3 months later on my calf edema made it escalate and spread.

* I suspected RSD after a WCB case worker read off symptoms etc over the phone to me @ 3 months after injury, an Orthotic surgeon had written "suspect RSD" on my WCB report.

* Diagnosis at 5 months post injury by a WCB doctor, they put me back physio insted of the blocks that were requested by myself and 2 doctors.

* WCB finaly sends me for blocks @ 9 months post accident, by then I had body wide (ignored by docs) symptoms, bilateral lumbar blocks for 3 month pain clinic stay.

* WCB sends me home @ 1 year when rt foot stops getting benifit they cared about no other area pain, or even that the left leg was still benifiting from the blocks, only the right compensable foot. :( matters to them. rt foots only worth 6.25% of my income and I cannot work.
System sucks.

:hug:

1. 2001; 42
2. Breastcancer-surgery
3. DX after 1 year, Neuro