[Steff]

Hi- I do not have RSD. I have PN maybe, or neuropathy from prolotherapy shots. I had them injected into feet that had been operated on 20 years ago and started to hurt. Something went terribly wrong. It was the wrong procedure for the wrong person/pain. I now have burning, stabbing, pins and needles, no numbness pain in both feet, legs and up to my spin sometimes. No color or temp change except for one inch on my ankle where there is a growth of tissue and it feels a little warmer, but has been that way since day one of the injections. If I wouldnt have had the injections, I wouldnt be on the computer right now. It has put me in a wheelchair the pain is so bad. It gets worse to walk or to hand my legs. No change with temp or touch unless you push hard and then its awful.
So what do you think?
steff

[theoneRogue420]

Hi Steff,

Did the PN forum tell you why they suggested you post here? Not that we mind, lol, I'm just not sure what we can do for you. The symptoms of PN and RSD are similar, but if you don't have rsd, then it would be more helpful to you to use the pn forum, I would think.

Rogue

P.S. I answered the PM you sent me re: the other thread in medications.

[Vicc]

Hi Steff.

I glanced over at your first post on the pn forum, hoping to learn when you had these prolotherapy injections. It would be helpful to learn when they began and ended as the description of the prolo process involves inflammation, which is how RSD begins.

In RSD, the inflammatory stage can last anywhere from a few weeks to a few months, so knowing when your prolotherapy began and ended could be useful...Vic

[Steff]

i guess they are at odds to my horrid burning and maybe somethng that worked for rsd would work for pn or central pain

had foot surgeries 22 years ago. pain, not burnng, work travel etc. dealt with it. then last year i started to have more pain and had prolotherapy injections april 2006 pain was horrid and has stayed that way. crawled right up my body. stops at my waist.

[Vicc]

Hi again, Steff,

No one here is a diagnostician, but based this happening 16 months ago and you aren't reporting allodynia (painful sensitiity to light touch), or painful hypersensitivity to cold temperatures, I would doubt that it is RSD.

This is considered great news at this forum...Vic

[Steff]

light touch ? would that be like stroking my hand up and down my leg and it feels knives instead of a hand? or crossing my legs?
steff
i think the idea of posting here was to see if some relief any of you received from anything that sounded like my symtoms might be of use.
s

[Vicc]

Hi once again, Steff,

After reading my last reply, I see how that first sentence could be viewed as a put-down, but it was meant to say "we all have opinions, but don't rely on mine in something as important as this'.. If my wording caused you any discomfort, I'm sorry.

And, yeah, sorta; I experience it as more of an electric-type burning, and lots of people talk about "burning", but "knives instead of a hand" could fit.

If my description sounds anything like you're experiencing, it is called allodynia. I recently wrote a thread about why GABAergic drugs (like Neurontin) are effective against allodynia in RSD; it's titled Facts you may not know about RSD. You might find that helpful.

Finally, allodynia may have many causes, but a deep, bone-chilling and painful cold in the limb is probably one of the most comment complaints of RSD sufferers, and a significant element in diagnosis. If your legs aren't almost frostbite-cold with the a/c blowing on them, I would still doubt whether it is RSD.

(Hmmm. "painfully cold", is a frequent topic here, but I wonder how common it really is. Maybe one of our more computer literate members could create a poll: Learn what % here have this sensitivity...maybe include skin temps by degrees below 98.6. Just a thought, not my summer project)

I kinda hijacked your thread at the end, but thats because I don't know any better...Vic

[Steff]

thanks for the input. i wish i could take lyrica or neurontin-tried and had rash to one and tight throat to the other. looking into the other anti-s meds, but the rest seem to have even worse side effects.
i appreciate your careful input
s

[tayla4me]

Hi Steff,

I wonder what criteria have been used to diagnose PN with you and not RSD?
Many of your symptoms sound familiar but then not all RSD sufferers report the same symptoms.
It is just too difficult to diagnose this way as I have an RSD friend who definitely has RSD but has NO allodynia. Her limbs are warm to hot and red and although she has deep bone pain her skin is not sensitive.
I hope that you can get some answers, maybe a change in pain management team maybe necessary.
Wishing you luck
Tayla

[daniella]

It was my suggestion over at the pn forum. I will say I have no clue on what I'm doing but when I went to Cleveland clinic and some other docs locally they said I have pn but mine should be treated like Rsd. I don't have the other rsd symptoms other then the severe inner ankle pain/knife/no circulation and severe sensitive to even like a fan or socks. So I thought sending steff here on some of her symptoms could give her some direction maybe. Again I have no idea and new to this but you all are helpful like the pn forum.