Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-22-2006, 08:16 AM #1
InHisHands InHisHands is offline
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Question What Doctors are you working with for your RSD?

I have a quick question. What Doctors (meaning what type of Dr) are you working with for your RSD? I have heard of people working with a neurologist, pain management and a rhuetmatoid Dr..

Currently I am working with a pain management Dr. and was wondering if a neurologist would be better?

Please tell me who you have had the best results/ help with. Thanks.
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Old 12-22-2006, 08:42 AM #2
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Hi Vanessa,

I have CRPS type II in my arm, and work with a neurologist. I also see an OT and saw a psychologist this spring, who helped with depression and biofeedback techniquest.

Whatever specialist you work with, make sure it's someone you can communicate well with.

Good luck!

Annie
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Old 12-22-2006, 03:02 PM #3
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I see a Pain Management doctor. They have a Psychiatrist in their office he works with for his patients also. He also sends me to another type of PM doctor who does my procedures such as SGB's & LSB's. The only neurologist I have seen was an IME who didn't know jack crap. But then do they ever??? *LOL* IME's that is. I have also done PT in a pool & am planning on going back to that.

Make sure that whoever you see knows as much as possible about RSD or is atleast willing to learn about it.

DebbyV
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Old 12-23-2006, 06:17 AM #4
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Hey

I am under a rheumatologist (who specialises in RSD), a pain management dr, a neurologist, wheelchair clinic and orthotics.

Been under loads of other clinics as well. Most important thing is to research things and to find a dr that is used to treating it and who will utilise physio etc as well.. neurologists are either awesome with RSD or totally horrendously awful - my first one was dreadful but my new one is brilliant!

Good Luck! ! !

Rosie xxx
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Old 12-23-2006, 01:55 PM #5
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Thanks for the responses. I think I am going to see a neurologist from Hahnamonn, since they are great and deal with RSD. As others have said, what Dr. doesn't matter so much as their experience in RSD. I need someone who knows what they are doing, and who will listen to me and work with me. I agree Annie Poo, I need to be able to communicate well with him/ her. That's the trouble with some Drs.

Thanks again!

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Old 12-23-2006, 10:20 PM #6
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I am under the care of a Doctor of Osteopathic Medicine (A rehabilitation medicine doctor/physiatrist). I am now almost 21 but during my teen years (from about 14-18 I was under a pediatric neurologist and then up until this past summer i have gone without a neurologist.

I just recently found an adult neurologist which is wonderful to work with the DO on pain control although at this point I only go about once every 4-6 six months.
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