[CZZ74]

Hi everyone, I have bilateral back swelling , upper back on both sides by scapulas. Does anyone else have this.. also flat rash on top of back swelling. burning pain. Heavy feeling as if back is filled with Water.? thanks -I have rsd -full body then just legs after coma. thanks CZ

[JOAN_M]

if you are laying down alot, it could be pooling of fluid, but that is just what came to mind. i would ask the doctor about it though, no increase of fluid in the body is good. it can be a defense mechanism but it is not good.
joan

[Jomar]

Are you laying down alot? On your back?
- or the swelling happens when sitting or upright also?

[InHisHands]

I get swelling in small lumps at different times (which looks like hives!), then I get some swelling of my entire back side.

Has it calmed down, CZ?

[tayla4me]

Originally Posted by CZZ74

Hi everyone, I have bilateral back swelling , upper back on both sides by scapulas. Does anyone else have this.. also flat rash on top of back swelling. burning pain. Heavy feeling as if back is filled with Water.? thanks -I have rsd -full body then just legs after coma. thanks CZ

Hello there,
Did you have a Ketamine Coma treatment? I would love to hear about it if you did and if you don't mind sharing of course. It sounds as though it was quite successful
If this was fairly recent then as Joan and Jo said the swelling and rash maybe just dependent oedema from lying on your back whilst in the coma.
Cheers
Tayla

[CZZ74]

Please accept my apology for not thanking you sooner for not posting. Those are good possibiilities poolling from being in bed. But it is there all the time I wish I could attach pictures I dont know how but the rash might be lesions it fades but does not go away. I am up more hours now then down at least most days. I did have the coma recently in Germany .in May I had a reduction in pain significant from head to hips. Orginal injury site legs remain in pain I am still going for infusions and they are improving but pain is still occuring in other sites now.. returning but not at the same intensity. I did well with the coma part of the treatment but then fell very ill and developed pnemonia and ended up there a month and a half, 30 days in icu a good portion of that intubated, so was it worth it - absolutely. I dont have my life back dont think i ever will but pain is down from 9-10 to a 6 and less some days. so a 50% reduction in pain. I am still very limited cant complete much in terms of an outing but i was close to going insane. Imean that lliterally the full body pain had become so consuming I think i was about to go insane. So for me it was all worth it as diffucult horrible as it was for me. Please let me know if you need any other information. Thanks again, cz

[JOAN_M]

sounds like you have been through a lot. i hope the pain remains tolerable. i can't imagine being in a coma like that although there are days that all that 'nothingness' might be such a relief.
take care and my prayers are with you. joan