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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Systemic - Not Systemic? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/27405-systemic-systemic.html)

tayla4me 09-11-2007 11:25 PM

Quote:

Originally Posted by lostmary (Post 147170)
Desi, You-Rock

We all love you and know that you would never hurt anyone with words or otherwise. No more said...
I'm seeing my PMD on Monday. (after I spend the weekend going to see another Broadway musical. can't wait.. gonna see RENT>>>>) and I'm hoping to get my first block for my foot. What should I expect and what does it mean. any info would be great...

Mary




Mary,
Do you know what type of block it is for your foot? I would love to share my experiences if it was one that I have had. I have had Bier blocks, lumber sympathetic blocks and facet joint injections.
Love Tayla:hug:

lostmary 09-12-2007 07:20 AM

Tayla,
I'm getting a lumbar block. It is for my right foot. I fell a few months ago and broke the toes on that foot. It isn't healing, so my PMD feels that the rsd has started in on that foot. No need for the block (according to my doc) for my left foot as I've had rsd there for a few years. What should I expect? some say warmth,how long should it last? Did they give you anything for pain? looking forward to your reply.

Mary

lostmary 09-12-2007 07:25 AM

desi,

More PT.. UGH.. Do you know what meds he is planning on using? Keep us posted after you see him.

The Limo leaves friday at 1:00pm. the show is Sat 2:00pm. Rent is all about love, loving and being loved no matter what. Also about friendship and illness. It is great. I saw it last time along with hairspary..awsome. Love them both

Hope the doc appt goes well.

love and friendship:grouphug:
mary

tayla4me 09-12-2007 07:55 AM

Quote:

Originally Posted by lostmary (Post 147305)
Tayla,
I'm getting a lumbar block. It is for my right foot. I fell a few months ago and broke the toes on that foot. It isn't healing, so my PMD feels that the rsd has started in on that foot. No need for the block (according to my doc) for my left foot as I've had rsd there for a few years. What should I expect? some say warmth,how long should it last? Did they give you anything for pain? looking forward to your reply.

Mary


Hi Mary,
I have had multiple Lumber sympathetic blocks, some have worked well for quite a while and some have been quite short lived but I am always happy to have another go.
They will lie you face down and hopefully give you some light sedation so that you will actually sleep through the procedure.
I have had one without sedation and I found it just too hard to keep still as it was painful just lying that way.
They should use fluroscopy/image intensifier to find the sympathetic nerve so as to maximise the relief.
When you wake you will probably feel a very warm sensation in your leg. It will probably look quite pink too, this is a sign that the anaesthetic has hit the right spot.You will often have a numb pubic area and parts of your upper leg maybe numb to touch. Walking is usually not affected unless you have had a very generous block that has hit the motor nerves also.
There is some discomfort on your back where they insert the needle and sometimes a bruise but compared to the pain we aare used to it is usually quite easy to manage.
Sometimes the pain relief is not immediate, don't despair if you feel no change, it can take a day or so before it kicks in.
I wish you all the best with your block, look forward to hearing how you go.
Cheers Tayla:

addit--My Pain doctor injects lignocaine into the block, he once included some steroid but only the once

Desi 09-12-2007 07:58 AM

I will know what kinds of meds he is going to use when I go back and see him on the 26th. of this month, Mary. I know one thing for sure, this new PMD leaves it up to me, when I told him I wanted to be relaxed or sedated when I get the Stelliate ganglion nerve block done. My other PMD didn't want to give me anything!! I don't know what type of medication he is using for the block, if this is what you meant?? I know that you will need probally nothing for pain afterwards. But if you do hurt from it, tell him/her! Ok now, you went to see Hairspray?? OMG your so darn lucky, girl!! who-Hooo!! LOL I'll be ready for the limo before 2:00.. say 1:00 ish.?? LOL Love ya! Thank you so much for the well wishes mary! ~Love, Desi

HeatherAnne 09-12-2007 01:53 PM

Quote:

Originally Posted by Desi (Post 147142)
[COLOR="Blue"]Ok.. ok.. why don't you leave well enough alone damn it!! I said I was sorry if I hurt anyone and you keep it up, so just go into your little corner now!! I am NOT a nasty person, but you just don't know when to stop do you?? ENOUGH SAID!! Gezzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz:mad:Des i COLOR]


Desi, it wasn't you that we were commenting on, we think you were completely fine at the comments you said. Just FYI.. I think everyone is confused at the point we were making but it wasn't at all about your posts...

Desi 09-12-2007 08:33 PM

Quote:

Originally Posted by HeatherAnne (Post 147431)
Desi, it wasn't you that we were commenting on, we think you were completely fine at the comments you said. Just FYI.. I think everyone is confused at the point we were making but it wasn't at all about your posts...

Again, Heather.. don't want to start any trouble here, but I did NOT post a comment on this thread!You mentioned that I was completely fine with my comment? I for one am not confused, just looking out for a very good friend(InHisHands) .. I sure hope you were not commenting on InHisHands comment?? If so, she is very ill and still managed to post a really great reply, and I for one just love her and will stand by her, as she is very close to my heart.she would never hurt you or anyone else by her well meaning comments, just so that's all cleared up. All the best~Desi

Desi 09-12-2007 11:30 PM

Thanks for your very kind reply that you said about me, you Dear "SWEET" friend of mine. I appreciate that so very much, Dawn!! Love ya lot's my good friend!! much ((Hugs, Dawn)) ~Love, Desi

frogga 09-13-2007 11:54 AM

I guess I see full body as every inch of me hurting, burning, with full colour change, spasms, temperature differences and swelling going on from time to time and of course alloydinia. I also have systemic difficulties from the RSD - I have already answered the other post 2 seconds ago so it's all there. However, I wanted to add that when I got RSD in one arm it sucked, now it is full body it still sucks. Pain is horrific to deal with wherever it is.. but I personally feel that the term full body refers to pain everywhere, and in my case organ problems as well.

We all have the right to have different opinions on this - everyones body is different as Tayla says, but I personally feel that full body =, well, full body!!

Just another bit... I guess having RSD already makes you more likely to develop it in other areas - and more likely for a spread to happen but it doesn't mean that it will spread and end up full body. If you look on this site there are very few people with full body RSD... hope this helps!!!

Love

Frogga xxxxxx

dealingwithtos 09-13-2007 01:47 PM

Hi Frogga!
 
Thanks for your opinion Rosie. That's what I was looking for.

By the way, I did get your postcard. Thank you so much. What a surprise to get it in the mail!

I hope you're doing alright. I would love to hear more about your trip!

I've been horrible. I'm switching from Lyrica 600mg to Neurontin 3600mg and I'm in horrible pain and nothing seems to help. At night I've tried tramadol and oxycodone which I feel I could take like candy...

I'm at work dizzy, nautious, in pain but trying to keep a smile on my face.

Thank you again for the postcard. :hug:

Beth.


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