Hi Everyone.

I have a question: What criteria is there to know whether RSD is full body? The reason why I ask is that my legs are on fire right now, but I am able to walk. I have RSD in my arms. So, even though my legs burn - not all the time - am I not systemic? Does that mean that the RSD is just not active in other parts of my body?

I sort of feel (please prove me wrong) that when a person has RSD, they really have it everywhere and with any trauma to a certain area will cause the RSD to be active in that area.

I am thoroughly confused.

What is your opinion?

I just asked about this a week or so ago.

I bumped my thread to see if it helps answer your questions.

Jules

I personally have RSD in my right leg and lower back but I know for me... if I trauma any part of my body it hurts really bad in that area for a few days (RSD burning pain) soo.. I know for me, I don't always have pain in other parts of my body but if i have a trauma it does cause a flare up in that part... does that help???

heather

I don't know if there is an official definition of full-body. I have always thought I was "lucky" because the RSD seemed to be confined to my left leg and foot. As painful as it got, I had pretty good health/strength/pain levels everywhere else. This lasted for many years.

A couple of years ago, I started to get pain in my right leg, then my hands, then my shoulder. etc. Now, there are times when I hurt all over and any little trauma (like an injection or blood test) will cause a flare-up. I suppose that is what people refer to as full-body. It is almost a comparative thing.

I still have the worst pain in my left leg. I am not being treated any differently for the full-body, other than the SCS does nothing for any other areas.

I am still lucky because I have not had to quit my job (yet.) Good luck to you.

Mike

Hi Mike,

Yes, I'm lucky too. I also work FT. Mine is primarily in my left arm/hand/shoulder. Although, I have signs in my right arm. My legs burn occasionally too. But, they don't look like they have RSD.

When it's going to storm (like tonight) I'm absolutely miserable. I'm a secretary so typing with my left arm is horrible.

Today is just a hard day. I wanted to stay home because I hurt, but to make matters worse, I was just given a dictation to transcribe which should take me about 3-4 hours....

Can I kill myself now????

Thank you everyone for responding.

i looked everywhere and could not find a real definition of 'full body' rsd, but i did see that it was called full body and systemic interchangably on one study so that is what i had said to jules.
i also said who cares? if you have a little rsd, that is too much, and it does stress ones entire body mind and soul. i said it was like being a little pregnant ... ha!
and please don't kill yourself! my goodness, don't even joke about that.
joan

It doesn't sound (to me) like you have full body if it isn't in your full body, for instance, it is not in your back, chest/ groin, face, etc...

please see my other post in "When is RSD 'full body'?", here: http://neurotalk.psychcentral.com/sh...57&postcount=8

Lets not minimalize anyone's pain. We all know whats its like to be in pain and we don't want to make any one person feel like their pain doesn't matter or doesn't count.

Let's respect everyone's situation and realize we are all in the same boat. Pain stinks no matter how much or little you have. Let's support each other not tear each other down.


NOTE: Thank-you Vanessa for editing your post after I commented.

I agree with you Joan, any pain is too much pain!

Hi Everyone.

InHisHands, Yes, I have burning in my face, legs, shoulder (left) in addition to both arms. I didn't think that your comment was very polite.

Yes, any pain is too much pain and, to be honest, life is that much harder when you're in pain.