Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-30-2007, 08:10 AM #21
tayla4me tayla4me is offline
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Dear Ali,
I have looked at your photos on the site and there is obvious oedema and dystonia of RSD but there is nothing to indicate that you have hypoxic tissue damage.
I know you report colour changes and sometimes it is very dark and looks black but this does NOT mean there is permanent damage particularly if very soon after your leg is pink or red again.
This discolouration is from vasomotor problems. The sympathetic nervous system dilates and constricts the vessels, in RSD you will often see a vast range of colours within a very short time and the fact that you legs and feet pink up again means there is sufficient oxygen getting to you legs most of the time.
I do support the use of Hyperbaric Oxygen therapy, I have had it myself. It does send oxygen at a much higher concentration than we breath into all the cells of our body and thus sends more blood to the nerves. It also helps to improve oedema which will in turn improve pain and circulation.

I am trying to explain in a way that is easy to understand for you but please do not be worried that any discolouration is necessarily a sign of permanent damage being done to the skin through lack of blood supply.
It is called transient which means it comes and goes. Hopefully you will soon be able to meet up with a Pain Team that will treat you correctly and all of this will just be a bad dream.
There are some occasions where some people have permanently blackened feet and hands but that is usually ischaemia caused by Peripheral vascular disease where the peripheral vessels do not have the ability to provide oxygen to the extremeties. This is as I said, more common in people who smoke or have diabetes and other chronic illnesses which compromise blood flow.
Thinking of you Ali,
Love Tayla
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Old 11-30-2007, 08:20 AM #22
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Heart Thank you Tayla

Tayla,
Many thanks for the reply, I really appreciate your help.
My foot goes black but about an hour later it goes blue and then red and then pink (so it kind of goes different colours very quickly, its so annoying) I will try and post a photo of my leg when it changes colour. I do suffer from Dystonia (my foots held in eversion and I cannot move it) and my foot is really swollen. Sometimes the swelling goes down a bit but then it comes back worse.
I am hoping to try HBO if I can
I hope you are having a pain free day
Take care
All my love
Alison
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