Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-05-2008, 10:42 AM #1
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart School Meeting

We had a meeting this morning with the School and the Behaivoural Support Officer. Me and my mum went to a centre about 5 miles away from where we live to meet up with some of the staff there to see if it would be possible for me to go there, instead of going to school.

The centre is really nice, it has a computer room, a kitchen, gym and tables to sit and do all of your school work at. We met up with the staff that work there and they are all really nice and friendly. We had a good look round and spoke to the staff and they said that if we were happy to go there, I could!! They seemed really interested in learning about my condition and what was the matter with me and even introduced us to some of the other children, that are also really nice. All of the kids have some sort of problems such as they are shy, have physical disabillities etc and had trouble in school so decided to go there instead. It has been decided that I will start going there from this Friday!! I am so excited and nervous at the same time.

This centre seems a lot better has you stay in one area so I don't have to walk, the teachers said they are happy for me to take a break whenever I need to and my mum has explained all about what is up with me so they are aware of it. They said that if I don't feel well one day, then all I have to do is give them a call and let them know.

At the moment I will just be going Monday, Wednesday and Friday's, so that I can get a break inbetween and hopefully not end up in a really bad flare. The club runs 4 hours a day from 8.45am to 12.45pm. They can arrange for a taxi to pick you up from your home free of charge but at the moment we feel it's better if my mum took me to and from the centre.

The teachers explained that they can either get me school work to do directly from my school (that would be fun for them as it took my teachers nearly 6 months to send me some work) or if I dropped out of school, they can give me some work to do and also the money would go directly to them, instead of the school. Having spoken to my mum and psychologist, they all feel that it's better if I didn't stay in touch with school at all and that I got work from them to do because school haven't been helpful to say the least.

I will keep you all updated. I am so excited and nervous at the same time, i'm also quite sad has i'll probably not see my tutor again. Wish me luck for Friday! ...
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