Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-12-2007, 08:23 PM #1
johnthepainter johnthepainter is offline
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Default Help Please--SCS information Needed

Hello All,

My wife has RSD and is thinking about installing a spinal cord stimulator. She and I would both appreciate any information and opinion regarding this topic. Thanks.

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Old 09-13-2007, 02:36 AM #2
tayla4me tayla4me is offline
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Hi John,
Have had a trial for a Stimultor but did not have it inserted. I know there are quite a few people here who will help you out.
Good wishes to your wife and yourself--you sound like the type of Husband everyone would love
Cheers Tayla
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Old 09-13-2007, 08:12 AM #3
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Hi John,

I have a scs and a pns (stimulator in my leg) I had them done aobut 3 years and 2 years ago. Love the stims!! Do you or your wife have any specific questions???

Amber
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Old 09-13-2007, 10:27 AM #4
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John,
there is info about scs in the thread 'interesting news' that i put through yesterday. it is up to date news and may help you.
also i have a friend i have known for years in CA who has an scs and would not live without it. she recently had to have it replaced and while it was out she was miserable and now she is healing nicely and feels so much better.
good luck, joan
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Old 09-13-2007, 07:40 PM #5
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Default Please keep responses coming--thanks/re:scs

Thank you all for your responses so far. And, I did catch the information on scs in your interesting news post Joan.

We have no specific questions in that both of us have read the usual reviews and medical information available. What we are more interested in, however, is an individualized assessment from those with first hand experience.

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Old 09-13-2007, 07:50 PM #6
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My doctor told me something that made me rethink the whole idea, and Im glad he told me because now the RSD has spread.

He said that it can only work in the one place it is intended to work in, and if the RSD spreads it wont cover the other areas. I dont mean this to discourage you, only to point out its limitations so that you can make an informed decision.

Im glad you are searching for all the info, very wise!

I wish you and your wife luck, and success in dealing with this.
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