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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Do These Photo's Look Like RSD (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/28126-photos-look-rsd.html)

buckwheat 09-15-2007 11:51 PM

Dear Tayla,

Their are 300 different strains of the borreliosis. Things like this can lay dormant for years and then just appear. I have 2 family members that are MD's, they are top notch. They really are.

When I got this RSD DX, I heard the I don't know very early on.:(

I was told to research, and do more research.

I am just a hair stylist. Much Love, Roz

buckwheat 09-15-2007 11:52 PM

Hi Tayla,

The thing is, you can get this from a flea bite. Scary isn't it. Much Love, Roz xxx



I need to also add that 50 % of the people bitten never knew, because of no rash or signs at the time. It can lay dormant for years and then kick in.

tayla4me 09-15-2007 11:57 PM

I am just a hair stylist.



Hey Roz,
Saying "just a hair stylist" is like saying "just a mum"
I'd be lost without my hairdresser, she is the cheapest counsellor I have ever been to:wink:
Hugs Tayla:hug:

buckwheat 09-16-2007 12:51 AM

Hi again,

This is very similiar to late stage syphilis. The difference is the Neuro. SX do not come on as quick but it is much rougher to treat. Yes, this can come from a flea bite, mosquitoes etc...You can even be born with it. Like I mentioned before their are several strains of this, I believe some of the strains in the States do not have to have a rash.

If I have this or anyone else for that matter it is vital we try to get help. Much Love, Roz

buckwheat 09-16-2007 05:05 PM

Hi Again What Got Me thinking about something breaking the Blood Brain Barrier are these 2 articles.

Does a Viral Infection Cause Complex T. Regional Pain Syndrome?

Hiroaki Kimura, MD, PhD, Assistant Prof.
Tomohiro Asou, MD

Department of Rehabilitation, Hiroshima University Hospital, 1-2-3 Kasumi, Minami-ku, Hiroshima, Japan 734-8551. Tel: +81-82-257-5566; Fax: +81-82-257-5594

In 1990 Omura, Y. reported that Herpes Simplex Virus Type 1 as the major cause of chronic intractable pain and its effective treatment using mixture of EPA & DHA with Selective Drug Uptake Enhancement Method. Subsequently among the other causes of pain, he included Chlamydia Trachomatis, Borrelia Burgdorferi, Mycobacterium Tuberculosis, human Herpes Virus type 6, and Circulatory Disturbances. In order to test possible involvement of viral infection in Complex Regional Pain Syndrome (CRPS), a disease which usually occurs in the extremities, we did a study of 17 patients with CRPS. They were examined for Herpes Simplex Virus (HSV) and Varicella Zoster Virus (VZV) by measuring IgG and IgM antibody titers, and 14 of these patients were also examined for Cytomegalo-Virus (CMV). As a control group 100 healthy Japanese employees at SRL, Inc. were also studied. In CRPS group, HSV IgG was positive in 12 of the 17 patients with an average antibody titer of 90.0 EIA value. VZV IgG was positive in all 17 patients with an average antibody titer of 26.8 EIA value. CMV IgG was positive in all 14 patients with an average antibody titer of 66.6 UA/ml. In control group, HSV IgG was positive in 54 subjects with an average antibody titer of 42.3 EIA value. VZV IgG was positive in 97 subjects with an average antibody titer of 26.2 EIA value. CMV IgG was positive in 82 subjects. There were no significant differences of positive rate of IgG antibody for the three viruses between patient and control groups. Although the difference was not significant, the average antibody titers of HSV in CRPS group were more than twice of those in healthy group. Antibody titers were almost equal in both groups for BZB. Possibly, some people in the control group who had latent virus, were also asymptomatic. In 2000, Takasaki, I. et al. In a separate animal study, inoculated with HSV Type-I the shin of the mouse causing allodynia and hyperalgesia (which are some of the characteristic findings seen in CRPS in humans). Also, VZV, which causes shingles which is sometimes followed by Post-Herpetic Neuralgia (PHN), is in the same family of HSV. As PHN resembles CRPS in symptoms, it is possible that HSV contributes to CRPS. Therefore, virus infection theory is an attractive hypothesis that accounts for many enigmas of CRPS.

Key Words: Complex regional pain syndrome (CRPS); Herpes simplex virus (HSV); Antibody titer; Enzyme immunoassay (EIA); Enzyme-linked fluorescent immunoassay (ELFA); Etiology

Address correspondence to Katsuhiro Toda, MD, PhD, (Present Address) Building 10/1N-118, 10 Center Drive Bethesda MD 20892 NIH/NIDCR/PNMB

buckwheat 09-16-2007 05:15 PM

Hi Everyone,

Forgive me for not explaining myself better, my right limb doesn't do to well at times. I am in no way saying any of this could be the root of your problem. I am just trying to find a solution to this. Much Love, Roz xxx


Anitbiotic Protocal for the RSD.
http://www.wehelpwhathurts.homestead...257,1,Clinical

Desi 09-16-2007 06:31 PM

A few of them did Roz. Especialy the hands, leg with that "shiney apperence look" The first one of the hand with the huge blister looked like it was infected!! Ouch!! Also some of these photo's look patchy like I believe Tayla said. Plus RSD is so different from person to person, different looks, different everything. well thanks for sharing those, Roz.. they were very interesting indeed! Love Ya~Desi

tayla4me 09-17-2007 03:25 AM

Roz,

Thanks for that article. It was interesting and funny enough it brought up some topics I just covered with my physio at my visit (torture):(

I love chatting with him, he is such a fantastic person who has made a commitment to discovering as much as he can about RSD/CRPS and then passing on that knowledge in the form of treatment for his parents.
I wish I could share him with you all.

Like you Roz, I have chronic infections----I'll be a happy person if I can find the exact cause and then the treatment might follow but I am sure sick of living on high doses of nasty antibiotics.

Cheers Tayla:hug:

buckwheat 09-17-2007 01:01 PM

Dear Tayla ,

Just a thought what about Bartonella in OZ. I am not leaving it out in my case for one second. It is much harder to get in Vet Medicine than Human Medical. Much Love, Roz

buckwheat 09-17-2007 01:13 PM

Bartonella (formerly known as Rochalimaea) is a genus of Gram-negative bacteria. Facultative intracellular parasites, Bartonella species can infect healthy people but are considered especially important as opportunistic pathogens.[1] Bartonella are transmitted by insect vectors such as ticks, fleas, sand flies and mosquitoes. At least eight Bartonella species or subspecies are known to infect humans.[2] In June 2007, a new species under the genus, called Bartonella rochalimae, was discovered.[3] This is the sixth species known to infect humans, and the ninth species and subspecies, overall, known to infect humans.

http://en.wikipedia.org/wiki/Bartonella

On a serious note, I do think any country, wants to protect it's public from fear. Also no test is accurate for this type of thing. Unless a person has a brain biospy. But even at that level how accurate with be the labs?


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