Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-19-2007, 10:08 AM #1
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Default Anniversary.....

Hey,

Today marks my 5th anniversary of the surgery that triggered my RSD!! It just doesnt seem possible that its been this long or how i made it through either. And if i can go through another 5 years with out any help. Soo today is a down day for me and wishes that i could just go back 5 years and 1 day and not do this sugery!!


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Old 09-19-2007, 10:13 AM #2
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Dear Amber,

It's been a bit over 5 1/2 years for me, but mine came from a fall in the kitchen.

The only one thing that has kept me going to hope. I get down at times but then I think the only way to go is up. We just got to hang in their. Much Love, Roz xxx
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Old 09-19-2007, 11:12 AM #3
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I hope your down day doesn't last too long.

I suppose many of us could look back at the time that life "changed" for us....
It's like the old saying " If I knew then what I know now ..."

If I knew I would end up with a chronic RSI/TOS condition -maybe I wouldn't have worked so darn hard on the assembly line - or I could have applied for a less physically demanding job.
Easily could have been a leadperson or supervisor - but I really enjoyed being part of the team.
but then again.. much of it came easy to me until I got hurt
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Old 09-19-2007, 12:52 PM #4
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Default Wow

5 year agoes? Times gits past us quickly. Mines has been 8 already. Hang in thare baby!!

Chin Up!!!! Mark
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Old 09-19-2007, 01:48 PM #5
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Thanks guys!! you are making my day go bettter then i thought it would be!! I am keeping my self busy too so that helps and my BF took me out to lunch!! (she just found out she is prego, so it was a reall good lunch)!! Thanks agian.. love ya all soo much!!

Mark,

How are you doing ??? Im soo sorry what happend to you!! But you sound soo strong and have a great support system with ya!! KEEP IT GOING DUDE!!! We have missed ya and glad that you are getting back!!

HUGS!!

PS... your sig line is soo funny.. made me laugh!!



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Old 09-19-2007, 03:20 PM #6
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Default Amber my heart goes out to you

I had my 4th anniversary in July- I just couldnt bellivie I had been in bed almost two years of that. It still shocks me what has happened and the changes Im still adjusting- its a rough day these anniversaries- Ill be thinking good thoughts for you. sincerely, cz
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Old 09-19-2007, 09:35 PM #7
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Amber,

Loving thoughts coming your way.

Tayla
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Old 09-20-2007, 05:32 AM #8
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I sure know how your feeling about this day. I too got hurt by a doctor, and on my anniversary I have those same thoughts.

Wish I could go back to the day before and change what I did. Plus all those feelings come rushing back. It is kinda weird. I guess it is because I know exactly why, how, and when it all went wrong, and remember every detail leading up to the decision to go to the ER.

This has been one of the hardest things for me to just accept. I dont really think I will ever come to grips with the idea of how it all went wrong, but hopefully someday the feelings will subside enough to where it doesnt over run our thoughts to much.

Hope it didnt mess with ya too bad, and remember got ya in my prayers always

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Old 09-20-2007, 10:01 AM #9
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Hi Amber,
I am happy that your day was going better for you!! My carpal tunnal surgery was only on Jan. 9th. of this yr. And I still think.. Why me?? this procedure is so common. I have had worst operation's and healed nicely after them. NOT this one, but how was I to know? I never ever heard of RSD until after my surgery was done and then diag. 3 months latter! ~Love, Desi
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Old 09-20-2007, 07:22 PM #10
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I don't really have an anniversary for when things went wrong in my feet. See.....all this started with feelings of numbness & the sensation of walking on rocks, all this in the bottoms of BOTH feet, without any pain associated with it in the spring/summer of 2003. This must have gone on for over 6 months. Didnt matter if I wore shoes or went barefoot these sensations & numbness kept getting worse & worse. Then I woke up one week before Thanksgiving & when I went to take that first step when I was getting out of bed the pain was so bad I fell back on the bed. It felt like I was walking on top of HOT Coals. The pain just kept getting worse so went to a Podiatrist. He said I had Neuroma's so tried cortisone & then alcohol injections to shrink them. After the alcohol shots I could no longer walk the pain was so excruciating. He ordered me to use a scooter so my inurance rented me one for 60 days, during that time they ended up buying me one. I used one at work for 6 months. Then tried surgery to remove the neuroma in my left foot. After that they DX'ed me with RSD in both feet. I never went for neuroma removal surgically in the right foot. The surgery in my left foot made the pain so much worse. This was in 4/04, so the exact day RSD started was when? Was it when the strange sensations started, when the pain in 11/03 started or after the surgery in 4/04???? For me I think it was when the weird sensations started, but I don't have any exact dated that happened. I am not even sure what month the numbness started. I do know that during the previous 4 to 5 months that I had slammed both feet, toes first, one into a doorway & one into a box of books. I went in for xrays to make sure I didn't break a bone in my foot, which I didn't. It was after I did this the numbness & weird sensations started in the balls of my feet. Or did the Neuroma's in my feet do this to me to begin with??? The two that were removed were very tiny.

Sometimes I think not knowing is better than having an exact date to dread. I just figure sometime in the spring/summer of 03. Over 4 yrs now. And the first year I don't remember too much of *L* the pain was that bad.

I am glad that your anniversay date ended better for you than it started for you.

Wishing you less pain each day,
DebbyV
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