Tinnitis is a symptom of RSD. For the first four years I had a loud "squeeking" sound especially in my left ear. It finally went away but now I get a very loud tone at as high as about 20k hertz that wants to drive me buggy sometimes. It's actually so loud that it hurts.

Cod liver oil seems to help it a little (taken internally) now, but I didn't try it until just a couple years back.

Sue this is exactly how I feel, and with 6 kids, and 6 grandkids my house is always full. There is no way I can watch tv with people talking. Everything will be just a cacophony of noise with nothing clear enough to understand.

I might be a bit different in that I do have meniere's disease in my left ear, and that ear is almost completely deaf due to that. My ears ring like someone just shot a large caliber rifle right next to me.

I do think RSD has made everything worse.

Allen,
I agree. RSD has made eveything worse. The little things that we never thought of before are now the hardest to do. I will never take anything for granted anymore. I don't have the ringing in my ears, just the pain. I am sorry for what you are going through. I have 3 daughters and 5 grandchildren. Two just left.This might sound so bad, but I am relived that they left.They just make me so tired. Hope your well.

Sue K

I definetly agree Sue! I have also had buzzing in the ears/ difficulties hearing along side mega neck and jaw pain. I tended to just blame it on my poor concentration span when the pain is bad - I sometimes feel like my internal landscape is abit Salvador Dali! When I'm in mega pain no sensation is how it should be, light burns and makes my eyes double, blur, and gives everything a weird shape and colour whilst my ears are so sensitive but sound is so far away.....

I give up trying to understand this stupid disease.

Love

Frogga xxxx

This is the way I often feel. I'll isolate something that definitely makes the condition worse or better but six months later it will change. Sodium nitrite used to set me off like an alarm clock but now even large amounts seem to have no effect.

It's constant change. And constant inexplicable symptoms and sensations. Just the other day my hand was so ticklish I could hardly touch anything and then a few hours later it was back to normal. I've had a spot on my back that itches so badly that no activity is possible until it's scratched vigorishly, for nearly two years now. It'll go away too, no doubt.

This thing feels like being on a roller coaster and there's new terror around every curve. If there's one constant it's the fear; the growing fear that what's next will be far worse than anything that's come before, the fear that even the fear itself will grow to unmanageable levels.

I've just got to slow down. Try not to think about what's been and move on as well as possible. I need to try to remember that there's probably a drug that can ease a problem until it goes away. I've just got to stay as positive as this lousy condition will allow and to remember this when it flares again.